Mental Illness
Conditions
Keywords
mental illness, risk, resilience, offspring, qualitative research, mood-psychosis spectrum
Brief summary
Despite consistent evidence that mental illness runs in families, intergenerational transmission of risk of mental illness is rarely considered in clinical practice. Neither preventive programs for children of parents with mental illness are usually implemented in care, nor supportive programs for parenting. Furthermore, parents with mental illness are not always aware of how their disorder may impact the well-being of their children. To date, the needs for counseling, care and research in parents with mental illness and family members of people with mental illness are unclear. Therefore, this prospective qualitative interview study aims to gain insights into the perceptions and experiences of (future) parents with mental illness, partners and family members of people with mental illness about risk for and resilience against mental illness in (future) children, as well as their needs for counseling, care and research.
Interventions
This is a qualitative study, no intervention will be used
Sponsors
Erasmus Medical Center
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Having (a partner or relative with) a diagnosis of a mental illness in the mood-psychosis spectrum, i.e., psychotic disorder, bipolar disorder, or severe depression * At least 18 years old
Exclusion criteria
* Insufficient proficiency of the Dutch language * No demonstration of adequate understanding of the purpose, procedures, risks, benefits, emergency contacts, and payment issues (in accordance with criteria to assess capacities to consent from Appelbaum & Grisso, 1988). * Unable to give consent to all aspects of the study.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Themes around the topics (related to perceptions and experiences) explored. | 1 hour | We developed an interview guide around the main themes (i) risk and resilience; (ii) information needs for care and counselling; and (iii) (biological) research to ensure key aspects relating to perceptions, experiences, and needs of participants around the chance risk for mental illness in (future) children will be covered during the interviews. It additionally allows the interviewer to ask follow-up questions on interesting perspectives put forth by participants. |
Countries
Netherlands
Contacts
Primary ContactLisanne AE van Houtum, PhD
Backup ContactHilmar H Bijma, MD, PhD
Outcome results
None listed