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Experience of Parents/Carers of Children With Severe Motor Disabilities Suffering From Spinal Pain?

What is the Day-to-day Experience of Parents/Carers of Children or Adolescents With Severe Motor Disabilities Suffering From Spinal Pain?

Status
Not yet recruiting
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT06287359
Acronym
Vé-Quo-Pa-H-R
Enrollment
15
Registered
2024-03-01
Start date
2024-12-31
Completion date
2025-12-31
Last updated
2024-11-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Low Back Pain

Brief summary

Parents of disabled children suffer from back pain more frequently than the general population. At present, the literature does not identify any specific factors responsible for this suffering. For patients suffering from chronic back pain, there are specific treatment programmes in the Physical Medicine and Rehabilitation Department, with a focus on pain management. The investigators would like to develop specific programmes for parents/carers of children/adolescents with severe motor disabilities. To achieve this, it is important to gain a better understanding of the factors that contribute to the onset of pain. With this in mind, the investigators are conducting a qualitative study to gain a better understanding of the day-to-day lives of these parents.

Interventions

Qualitative research with individual interviews

Sponsors

Centre Hospitalier Universitaire de Nīmes
Lead SponsorOTHER

Study design

Observational model
COHORT
Time perspective
PROSPECTIVE

Eligibility

Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

* Parents or carers of children with severe motor disabilities complaining of spinal pain

Exclusion criteria

* Parent/carer refusing to participate

Design outcomes

Primary

MeasureTime frameDescription
Individual interviewsbaselineTo understand the lived experience of parents/carers during the daily care of their child by means of a phenomenological analysis of the interviews

Contacts

Primary ContactMélanie PORTE
melanie.porte@chu-nimes.fr+33 4 66 68 34 59

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026