YASU Research Registry: For Young Adults With Cancer

Young Adult Survivors United Cancer Research Registry

Status

Terminated

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT06275854

Enrollment

192

Registered

2024-02-23

Start date

2025-02-03

Completion date

2025-09-30

Last updated

2025-10-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Breast Cancer, Cancer, Colorectal Cancer, Germ Cell Cancer, Leukemia, Lymphoma, Melanoma, Sarcoma

Keywords

young adult cancer

Brief summary

The goal of this observational research registry is to learn about health, wellbeing, and needs of survivors of young adult cancer (diagnosed between the ages of 18 and 39). The main question\[s\] it aims to understand are: * What are the levels of depression, anxiety, social support, and financial distress * Determine effectiveness of YASU programming by measuring changes over time With this registry, the investigators also plan to identify survivors who may be eligible for participation in future research studies pertaining to young adult cancer. Participants will be asked to complete electronic surveys every 6 to 12 months during participation in the registry.

Detailed description

The study will be conducted online.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

1. Cancer diagnosis received between the ages of 18 and 39. 2. Able to speak and read English

Exclusion criteria

1. Inability to provide consent (such as neurological illness or mental incapacity) 2. Has not registered as a member of YASU

Design outcomes

Primary

Measure	Time frame	Description
Anxiety	enrollment in registry, 6 months later, yearly until death	General Anxiety Disorder-7 (GAD-7). Scores range from 0-21 with higher scores indicating higher levels of anxiety.
Depressive symptoms	enrollment in registry, 6 months later, yearly until death	Patient Health Questionnaire- 9 (PHQ-9) Scores range from 0-27, with higher scores indicating more depressive symptoms.
Social Support	enrollment in registry, 6 months later, yearly until death	MOS Social Support Survey Instrument The survey consists of four separate social support subscales and an overall functional social support index. A higher score for an individual scale or for the overall support index indicates more support. MOS Social Support Survey Instrument Measure of Social Support Survey Instrument
Financial Toxicity	enrollment in registry, 6 months later, yearly until death	COST: A FACIT Measure of Financial Toxicity (COST - FACIT (Ver 2)) Scores range from 0-44. The higher the score, the better the Financial Well-Being
Needs Assessment	enrollment in registry	AYA Psycho-Oncology Screening Tool (AYA-POST) There is no scoring required for this tool.

Secondary

Measure	Time frame	Description
Name, address, email, phone number	enrollment in registry	Contact information if willing to be alerted about future research

Countries

United States

Outcome results