Oncologic Disorders
Conditions
Brief summary
Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on: * awareness (knowledge of the issue); * significance attributed and subjective perception; * implications/fallouts perceived or experienced on one's present and future history.
Detailed description
Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on: * awareness (knowledge of the issue); * significance attributed and subjective perception; * implications/fallouts perceived or experienced on one's present and future history.
Interventions
None listed
Sponsors
Centro di Riferimento Oncologico - Aviano
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
20 Years to No maximum
Inclusion criteria
* Age at diagnosis between (or equal to) 15 and 39 years; * patients not in active phase of treatment; * at least 5 years elapsed since diagnosis; * comprehension and written expressive ability of the Italian language. * subscription informed consent to the study.
Exclusion criteria
NA
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Frequency of participants citing words attributable to the topic of awareness in the text with the aim to explore the experience of adolescents and young adults with prior cancer with respect to the issue of the right to be forgotten. | up to 1 year | Frequency with which words attributable to the topic of awareness are expressed in the text |
| Frequency of participants citing words attributable to the thematic area that delineate the architecture of the text about meaning and subjective perception of the right to be forgotten. | up to 1 year | Frequency of participants citing words attributable to the thematic area that delineate the architecture of the text about meaning and subjective perception of the right to be forgotten. |
| Frequency of participants citing words attributable to implications/implications perceived or experienced on one's present and future history with respect to the issue of the right to be forgotten. | up to 1 year | Frequency of participants citing words attributable to implications/implications perceived or experienced on one's present and future history with respect to the issue of the right to be forgotten. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Frequency of patients with information that can lead to the recognition of the right to be forgotten primarily in the AYA population | up to 1 year | Frequency of patients with information that can lead to the recognition of the right to be forgotten primarily in the AYA population measured through indicators that identify this argumentative junction in the text |
Countries
Italy
Contacts
Primary ContactMaurizio Mascarin, MD
Outcome results
None listed