Reproductive Behavior
Conditions
Keywords
Fertility
Brief summary
The purpose of this study is to evaluate a web-based education tool geared at helping Adolescent and Young Adult (AYA) patients better understand fertility and genetic risks for cancer in future offspring.
Interventions
BEHAVIORALREFLECT web-based tool
Partnering with Nest Genomics, Investigators have developed a customizable web-based tool to support AYA patients through their cancer diagnosis journey for topics related to future family building and genetics. This interactive tool will include educational content to organize knowledge, make connections between concepts, and will include web links to more in-depth content and embedded videos. The interface will allow users to document questions that would be helpful in provider discussions and include decision support to assist with determining values and needs for proceeding with consultations related to genetic counseling and testing, and fertility.
Sponsors
H. Lee Moffitt Cancer Center and Research Institute
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 39 Years
Healthy volunteers
No
Inclusion criteria
* Adults between the ages of 18-39 * Must have received Cancer care at Moffitt Cancer Center * Participants must consider having a child in the future or have had children at the time of diagnosis * Participants must be able to speak and read English * Participants must have access to a device that can connect to the internet
Exclusion criteria
* Any participants who do not meet all Inclusion Criteria
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Ease of use of the REFLECT tool | One Year | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) |
| Confidence in use of the REFLECT tool | One Year | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) |
| Complexity of use of the REFLECT tool | One Year | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) |
| Desire to use the REFLECT tool | One Year | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) |
| Perception of inconsistencies of the REFLECT tool | One Year | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) |
Countries
United States
Contacts
PRINCIPAL_INVESTIGATORSusan Vadaparampil
Moffitt Cancer Center
Outcome results
None listed