Autism Spectrum Disorder
Conditions
Brief summary
Evaluation and follow-up of children diagnosed with an autism spectrum disorder in French-speaking Belgium in order to optimize diagnostic protocols, the quality of care required and its accessibility, and to determine the impact of an autism spectrum disorder on schooling, family and society.
Detailed description
The aims of the research project: * To collect a wide range of data in order to improve knowledge of children with autism spectrum disorder (ASD) in French-speaking Belgium by prospectively including all children and adolescents making a request to the centres of reference. The creation of a common database will make it possible to collect general socio-demographic, geographical and epidemiological data, to characterise the different profiles and to accurately monitor developmental trajectories. * Evaluate the feasibility and practical implementation of the treatment proposed following a diagnosis of ASD in a child. * Implement protocols to improve the quality of care for beneficiaries. * To enable the development of fundamental research protocols. Many questions remain unanswered about the genetic, neuro-cognitive and linguistic characteristics of autism. Only rigorous studies carried out on large, carefully defined samples can advance research. * Increase public knowledge and understanding of the ASD.
Interventions
OTHERinclusion in the register
socio-demographic data collection and proposed therapy
Sponsors
Université Libre de Bruxelles
Université de Namur
University of Mons
Université de Liège
Université Catholique de Louvain
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
No minimum to 18 Years
Healthy volunteers
No
Inclusion criteria
* children/adolescents (under 18 years of age) who apply to an autism reference center or who are followed up in an autism reference center from French-speaking region of Belgium.
Exclusion criteria
* refusal by the family to allow their child's data to be included in the database.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Creation of an ADS register | Throughout the entire study, approximately during 5 years | creation of a common ASD register to collect general sociodemographic, geographic and epidemiological data, characterize the different patient profiles and accurately track development trajectories |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Feasability assessment | Throughout the entire study, approximately during 5 years | Evaluate the feasibility and practical realization of the proposed care following a diagnosis of ASD in a child and implement protocols to improve the quality of therapy. |
| Protocols development | Throughout the entire study, approximately during 5 years | Enable the development of fundamental research protocols: genetic, neurocognitive and linguistic |
| Schooling evaluation | Throughout the entire study, approximately during 5 years | Evaluate the schooling of children with ASD of all ages |
Countries
Belgium
Contacts
Primary ContactMarie-Cécile Nassogne, Prof
Backup ContactMarine Houssa, PhD
Outcome results
None listed