Experience, Life, Long COVID
Conditions
Keywords
Post-Acute COVID-19 Syndrome, patient experience, qualitative research
Brief summary
Background: One in ten people infected with COVID-19 presents persistent COVID, which consists of the presence of symptoms three months after the acute manifestations of COVID-19 and their persistence for at least two months, without being explained by an alternative diagnosis. The characteristics and clinical approach to persistent COVID syndrome are fairly well known, but not what the experience of people with persistent COVID is in relation to their daily life, their work life, and their experience with the healthcare received. Objective: to understand the experience of patients with persistent COVID in relation to the disease, the health care received and re-entry into the world of work Methods: Qualitative, descriptive, phenomenological study, based on individual interviews. The study protocol will be registered in Clinicaltrials.gov. People with persistent COVID treated at the Parc Taulí Hospital will be included. Sampling will be by convenience, purposive and snowball and the sample size will be determined by data saturation. Semi-structured individual or group interviews will be conducted and the data will be analyzed following a reflective thematic analysis (Brawn and Clarke). The preliminary report will be triangulated with some participants and with the results obtained from a scoping review carried out by the research team.
Interventions
None listed
Sponsors
Corporacion Parc Tauli
Universitat Autonoma de Barcelona
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 65 Years
Healthy volunteers
No
Inclusion criteria
* women and men diagnosed with persistent COVID between March '20 to the present according to WHO criteria (persistent symptoms three months after the acute manifestations of COVID-19 and lasting at least two months and cannot be explained by an alternative diagnosis). * treated at the Parc Taulí Hospital * from 18 to 65 years
Exclusion criteria
-people who do not understand or can communicate in Catalan or Spanish.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Experience of the disease | Up to three years | How is living with LongCOVID. Assessed through semi-structured interviews. |
| Experience with healthcare received | Up to three years | How is the experience of patients with the healthcare received for their condition. Assessed through semi-structured interviews. |
| Experience with return to work | Up to three years | What were the barriers and facilitators for returning to work after the disease. Assessed through semi-structures interviews. |
Countries
Spain
Contacts
PRINCIPAL_INVESTIGATORAnna Selva, MD, MPH, PhD
Parc Taulí, Hospital Universitari- I3PT
STUDY_DIRECTORJuan Leiva, PhD
Universitat Autònoma Barcelona
PRINCIPAL_INVESTIGATORPilar Peña, MD
Parc Taulí, Hospital Universitari- I3PT
Outcome results
None listed