Juvenile Idiopathic Arthritis, Self-Management, Telerehabilitation
Conditions
Brief summary
Juvenile idiopathic arthritis (JIA) is the most common chronic rheumatic disease of unknown etiology in childhood. JIA covers several different subgroups and is predominantly manifested by peripheral arthritis. Joint swelling, effusion, tenderness, pain in JIA; causes functional limitations, fatigue and quality of life disorders. Chronic inflammation limits the patient's daily activities and productivity. Self-management is defined as an individual's ability to manage their symptoms, treatment, lifestyle changes, and the psychosocial and cultural consequences of health conditions. Good self-efficacy and coping skills reduce the health and financial burden on the individual as well as on health care, benefiting society in general. Telerehabilitation is the dissemination of rehabilitation services through communication technologies. In the literature, it is seen that the studies on internet-based exercise applications are limited. In the studies, people were encouraged to physical activity with an internet-based application and the benefits of being active were given within the scope of patient education, and it was reported that the level of physical activity effectively improved as a result. It can also increase endurance, has been reported to be safe and feasible. In our study, unlike the literature, the self-management program and exercise applications will be integrated into the internet-based telerehabilitation method, based on the fact that the exercise practices in JIA are effective in disease management and improvement of symptoms. Therefore, in our study; the effectiveness of telerehabilitation-based exercise methods to be applied additionally synchronously and asynchronously to self-management education in children and adolescents with JIA on pain, disease activity, functional status, fatigue, quality of life, psychosocial status, self-efficacy and satisfaction will be examined and compared.
Interventions
OTHERSelf-Management Supported Telerehabilitation
Supporting the exercises with an internet-based environment and self-management training for Children and Adolescents with Juvenile Idiopathic Arthritis
Sponsors
Pamukkale University
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
TREATMENT
Masking
SINGLE (Outcomes Assessor)
Eligibility
Sex/Gender
ALL
Age
8 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Having been diagnosed with Juvenile Idiopathic Arthritis according to ILAR diagnostic criteria * 8-18 years old * Agreeing to do the exercises throughout the study * Stable symptoms and medications * Internet and computer access
Exclusion criteria
* Be younger than 8 years old * Surgical or arthroscopic operation in the last 1 year * Having any musculoskeletal disease or orthopedic, neurological, psychological disease that may prevent participation in exercise * Presence of active synovitis and arthritis * Active vestibular disease * Family and patient's inability to adapt to the assessment * Having a psychiatric illness that affects cooperation * Having heart failure and lung pathology at a level that will affect activities of daily living
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Pediatric Quality of Life Inventory Multidimensional Fatigue Scale (PedsQL-F) | Change from baseline to three months | It assess the fatigue in children. |
| Juvenile Idiopathic Arthritis Disease Activity Score (JADAS) | Change from baseline to three months | It assess the disease activity in patients with JIA. |
| Childhood Health Assessment Scale (CHAQ) | Change from baseline to three months | It assess the children's functional ability over the past week. |
| Pediatric Quality of Life Inventory (PedsQL) 3.0 Arthritis Module | Change from baseline to three months | It assess the patient's quality of life in pediatric arthritis. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Numeric Rating Scale | Change from baseline to three months | It assess the pain. |
| 5 times sit and stand test | Change from baseline to three months | It assess the functional status, muscle strength an endurance. |
| 6-Item Self-Efficacy Scale for Managing Chronic Diseases | Change from baseline to three months | It assess the self-efficacy in patients with chronic diseases. |
| The Juvenile Arthritis Biopsychosocial and Clinical Questionnaire -JAB-Q | Change from baseline to three months | It assess the biopsychosocial status in JIA patients. |
Countries
Turkey (Türkiye)
Outcome results
None listed