Palliative Care
Conditions
Brief summary
In this pilot study, physicians and nurse practitioners working in different care settings will use MuSt-PC, for adult patients with any life-limiting iilness, for whom the Surprise question is answered negatively: if the HCP answers no to the question Would I be surprised if this patiënt died in the next 12 months?''. In total, at least 20 eligible patients will be recruited and asked to perform all study assessments.
Detailed description
In this pilot study, physicians and nurse practitioners working in different care settings will use MuSt-PC, for adult patients with any life-limiting iilness, for whom the Surprise question is answered negatively: if the HCP answers no to the question Would I be surprised if this patiënt died in the next 12 months?''. In total, at least 20 eligible patients will be recruited and asked to perform all study assessments. After a baseline screening assessment, all eligible patients with at least 2 simultaneously occurring symptoms with a numeric rating score £4 on the 11 point scale on the Utrecht Symptom Diary, will be asked to fiil out the Utrecht Symptom Diary during two weeks. In the first week twice daily (morning and evening), in the second week once daily (evening).
Interventions
OTHERUSD questionnaire
After a baseline screening symptom assessment, all eligible patients with at least 2 simultaneously occurring symptoms with a numeric rating score ≥4 on the 11 point scale on the Utrecht Symptom Diary, will be asked to fill out the Utrecht Symptom Diary during two weeks. In the first week twice daily (morning and evening), in the second week once daily (evening).
Sponsors
Leiden University Medical Center
University Medical Center Groningen
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Patients identified as in a palliative care trajectory (based on a negative answer to the surprise question Would I be surprised if this patiënt died in the next 12 months?) * All primary diseases (cancer, non-cancer (e.g. COPD, haart failure, frailty) * Patients should have at least two symptoms on the Utrecht Symptom Diary with a numeric rating score of 4 or higher * Life expectancy of at least 4 weeks * Able to fill out Dutch questionnaires * Informed consent
Exclusion criteria
* Patients who are unable or unwilling to self-assess their symptoms at baseline.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Ability and willingness of patients to complete follow-up assessments | after 2 weeks | the percentage of patients who completed all questionnaires during follow-up |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Feedback about the follow-up assessments within this pilot | after 2 weeks | open questions |
| Recruitment of patients; the number of patients that consented and those that declined participation, as well as number of eligible patients. | after 2 weeks | % of patients |
| Adherence to advice by patients provided based on the MuSt-PC CDSS | after 2 weeks | % of patients |
| Patient impressions of the MuSt-PC CDSS | after 2 weeks | 10 questions with a 4-point Likert scale |
| Time until symptom burden decreases after the use of the MuSt-PC CDSS based on the filled out Utrecht Symptom Diaries (days) | after 2 weeks | in days |
Countries
Netherlands
Outcome results
None listed