Acceptance of Visible Chronic Dermatological Disease, Disease Acceptance, Psychological Well-Being, Social Segregation
Conditions
Keywords
Chronic dermatological disease, Psychology, Sociology, Disease Acceptance, Vitiligo, port wine stain, hyperpigmentation, alopecia areata
Brief summary
The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness).
Detailed description
The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness). The investigator will screen the patients and give them a link to complete the questionnaire (according to the age), that includes a pre-scale of acceptation of 50-55 items.
Interventions
BEHAVIORALQuestionnaire
Questionnaire according to age (6-13;14-17); the parents for minors and adults
Sponsors
INSERM UMR 1246 SPHERE
University Hospital, Tours
Study design
Observational model
FAMILY_BASED
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
6 Years to No maximum
Inclusion criteria
1. Targeted pathologies: * Flat angioma * Primary hypopigmentation and early vitiligo * Primary hyperpigmentation * Refractory alopecia areata or congenital alopecia 2. Persons concerned: * Children (≥ 6 years old) suffering from one of the aforementioned pathologies * Adults suffering from one of the above-mentioned pathologies * Parents of children suffering from one of the aforementioned pathologies * Parents of young adult patients if they live under the same roof 3. Oral agreement for each person (major/minor) and, where applicable, one of the holders of parental authority (minor)
Exclusion criteria
1. Secondary marks (post-inflammatory, post-medication, post-traumatic, etc.) 2. Major psychiatric disorders
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Questionnaire analysis | Up to 4 weeks | Analysis of responses to the 4 questionnaires (scales) evaluating the acceptance of chronic dermatological diseases visible in children, adolescents, adults and parents, respectively. |
Countries
France
Contacts
Primary ContactAnnabel MARUANI, MD-PhD
Outcome results
None listed