Activity Pacing, Chronic Condition, Fatigue, Physical Activity, Self-regulation
Conditions
Keywords
physical activity behavior, self-regulation, fatigue, chronic condition
Brief summary
This project will focus on perceived fatigue as a barrier to physical activity participation and will explore if and how activity pacing, fatigue management, and self-regulation strategies can help to overcome this barrier in adults with chronic conditions who experience fatigue symptoms. The main aims are: 1. To demonstrate the differences and similarities on activity pacing, perceived fatigue, self-regulation, physical activity, and health-related quality of life in adults who experience fatigue by comparing individuals who have been through an activity pacing program or not. 2. To explore thoughts, experiences, needs, and perspectives on activity pacing of adults with fatigue and health professionals as well as any ideas for future development of an optimal intervention. Participants will be invited to complete questionnaires on several variables (activity pacing, physical activity, fatigue, health-related quality of life, and self-regulation of physical activity). In addition, they will be invited to wear an Actigraph for 7 full days and they will also be invited to a focus group interview.
Detailed description
Activity pacing is a fatigue management strategy that regulates energy and activity levels while maintaining or increasing engagement in physical activity. This approach is particularly beneficial for individuals with chronic conditions who experience significant fatigue as they often struggle with sustained physical activity participation due to recurring patterns of overexertion and subsequent fatigue or pain. Therefore, activity pacing strategies are important because individuals learn to manage fatigue symptoms, optimize physical activity behaviour, and accomplish a more stable activity pacing pattern, which will improve their health-related quality of life and well-being.
Interventions
None listed
Sponsors
Newcastle-upon-Tyne Hospitals NHS Trust
Northumbria University
Study design
Observational model
CASE_CONTROL
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Diagnosed with a chronic condition * Experience fatigue * Ambulatory
Exclusion criteria
* Children * Wheelchair users
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Physical activity | 1 point in time measuring for the past 7 days | Self-reported PA: IPAQ is a 7-item measure that assesses the intensity of physical activity and sitting time in their daily lives . It has been validated in adults with stroke . |
| Perceived Fatigue | 1 point in time measuring for the past 7 days | 2)FACIT-F (version 4) is a 40-item questionnaire evaluating self-reported fatigue and its influence on everyday activities and function among adults with cancer and older people experiencing fatigue . FACIT-F is valid and reliable in several patient populations. |
| Objective Physical Activity | 7 days | Participants will be invited to wear an Actigraph for 7 full days. |
| Perceived fatigue | 1 point in time measuring for the past 7 days | Fatigue Severity Scale is a 9-item questionnaire assessing the impact of perceived fatigue in adults with chronic disorders. FSS is valid and reliable to determine the impact of perceived fatigue among several clinical populations. |
| Engagement in Pacing and Perceived Risk of Overactivity | 1 point in time measuring for the past 7 days | The Activity Pacing Questionnaire (APQ) is a 7-item measure assessing activity pacing and risk of overactivity. Reliability and construct validity have been investigated and the paper is in preparation. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Health-related Quality of Life | 1 point in time measuring for the past 7 days | RAND-12 health status inventory is a 12-item questionnaire that evaluates the health-related quality of life. Literature supports acceptable construct validity and test-retest reliability of the RAND-12 among clinical populations. |
| Self-regulation | 1 point in time measuring for the past 7 days | Physical Activity Self-Regulation scale (PASR-12) is a 12-item measure assessing self-regulation for physical activity. PASR-12 has demonstrated validity and reliability in older adults. |
Countries
United Kingdom
Contacts
Primary ContactIoulia Barakou, MSc
Backup ContactFlorentina Hettinga, PhD
Outcome results
None listed