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A Research Registry on Aggressive PitNETs

A Research Registry on Aggressive PitNETs

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT05974696
Acronym
RECAPitNETT
Enrollment
200
Registered
2023-08-03
Start date
2023-06-15
Completion date
2029-06-15
Last updated
2023-08-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Endocrine Tumor

Keywords

Endocrine Tumor, Reference centre, rare diseases, transcriptoms

Brief summary

To allow the identification of markers, it is necessary to extend research networks more widely to collect and properly explore aggressive pituitary tumours. The multidisciplinary consultation meeting (RCP), organised by the reference centre for rare diseases of the pituitary gland, dedicated to aggressive pituitary tumours and carcinomas (HYPOcare), which is unique in France and brings together national experts, currently makes it possible to orientate the management of patients with an aggressive pituitary tumour. With more than 80 patient files discussed since its inception, the patient cohort via the HYPOcare RCP is one of the largest both nationally and internationally. At present, this data source is only dedicated to the clinical management of the files without the possibility of carrying out research work

Interventions

None listed

Sponsors

Hospices Civils de Lyon
Lead SponsorOTHER

Study design

Observational model
COHORT
Time perspective
PROSPECTIVE

Eligibility

Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

* Inclusion Criteria : * Patients with a diagnosis of pituitary tumour * Patients whose file has been presented to the national HYPOcare RCP *

Exclusion criteria

: * Patients objecting to participating in this research

Design outcomes

Primary

MeasureTime frameDescription
Characterisation of aggressiveness of pituitary tumours by tanscriptome analysis3 yearsMolecular and transcriptomic signature of aggressiveness of pituitary tumours predictive of prognosis

Countries

France

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026