Health Care Utilization, Quality of Life
Conditions
Brief summary
The purpose of this study is to determine whether participation in the Mobility Opportunities Via Education (MOVE) program is associated with reduced use of healthcare for individuals with developmental disabilities.
Detailed description
The purpose of this study is to determine whether participation in the Mobility Opportunities Via Education (MOVE) program is associated with reduced use of healthcare for individuals with developmental disabilities. The investigators will compare healthcare events and healthcare expenditures for children and adults during intervals of at least one year when the subjects were participating in the MOVE program versus intervals of at least one year when the same individuals were not participating in the MOVE program based on health insurance records (i.e. Medicaid). Healthcare events are those which required professional medical services (associated with International Classification of Disease (ICD-XX) codes) or prescription medications. Healthcare events and healthcare expenditures will be reviewed from healthcare records obtained by Medicaid, Medicare, or private insurers and data will be compared between intervals.
Interventions
OTHERMOVE Program
Mobility Opportunities Via Education functional therapy program.
Sponsors
Center for Disability Services, New York
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
5 Years to 65 Years
Healthy volunteers
No
Inclusion criteria
CHILDREN: Inclusion Criteria * Males and females 5-21 years old. * Participated in the MOVE program pre-COVID and post-COVID. * Did not participate for at least 4 months in the MOVE program during COVID. * Has a healthcare payor(s) who makes healthcare records available upon request. * Subjects whose legal guardians are willing to give informed consent to obtain and review healthcare records from the subject's primary (and secondary, if applicable) payors. CHILDREN:
Exclusion criteria
* Subjects who did not participate in the MOVE program through the duration of Interval #1 and Interval #3. * Subjects whose legal guardians are unwilling to cooperate with the requests to obtain and review healthcare records and expenditures from the subject's primary (and secondary, if applicable) payors. ADULTS: Inclusion Criteria * Males and females 22-65 years old. * Participated in the MOVE program during Interval #1 and Interval #3. * Did not participate for at least 4 months in the MOVE program during Interval #2. * Has a healthcare payor(s) who makes healthcare records available upon request. * Subjects who are willing to give informed consent and/or subjects' legal guardians who are willing to give informed assent to obtain and review healthcare records from the subject's primary (and secondary, if applicable) payors. ADULTS:
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Sum of Disability Adjusted Life Years | March 1, 2019 - April 30, 2023 | Healthcare events will be reviewed from the insurance record. International Classification of Disease (ICD) codes will be use to convert the healthcare event to disability adjusted life years. The sum of all disability adjusted life years will be calculated. |
| Number of Healthcare Events | March 1, 2019 - April 30, 2023 | Healthcare events will be reviewed from the insurance record. The number of visits for professional healthcare will be determined. |
| Cost of Healthcare Events | March 1, 2019 - April 30, 2023 | Healthcare events will be reviewed from the insurance record and total costs associated with healthcare utilization will be determined. |
| Cost of Medication Use | March 1, 2019 - April 30, 2023 | Insurance records will be reviewed and the cost of medication used will be determined. |
| Hip Range of Motion (Degrees) | March 1, 2019 - April 30, 2023 | From the Mobility Opportunities Via Education (MOVE) program records, hip range of motion (in degrees) will be determined. |
| PedsQL Quality of Life Scale Score | March 1, 2019 - April 30, 2023 | From the Mobility Opportunities Via Education (MOVE) program records, the Pediatric Quality of Life Inventory (PedsQL) outcome instrument will be used to determine quality of life. The PedsQL is comprised of 7 questions with each question scored on a scale of 0-4. Higher scores indicate a higher quality of life. |
| Top Down Motor Milestone Test Score | March 1, 2019 - April 30, 2023 | From the Mobility Opportunities Via Education (MOVE) program records, the Top Down Motor Milestone (TDMMT) score will be determined as an assessment of function |
Countries
United States
Contacts
Primary ContactEric H Ledet, Ph.D.
Outcome results
None listed