Borderline Intellectual Functioning, Mild Intellectual Disability
Conditions
Keywords
self-report questionnaires, inclusive diagnostics, easy-read language, adaptive functioning
Brief summary
In the proposed study, the investigators aim to investigate whether the existing ABAS-3 self-report questionnaire is suitable to be completed meaningfully by individuals who are perceived as having mild intellectual disability (55\<IQ\<85) based on cognitive impairment. Based on the participants' experiences and researchers' expertise, the investigators develop a 'more inclusive' self-report version. The investigators then look at the extent to which participants indicate that they understand this version better, based on user experiences and limited psychometric research. In doing so, the investigators also compare the outcomes of the self-report and informant-report variant.
Interventions
DIAGNOSTIC_TESTAdaptive functioning self-report questionnaire
A self-report questionnaire for assessing level of adaptive functioning
DIAGNOSTIC_TESTAdaptive functioning self-report questionnaire - adapted
A self-report questionnaire for assessing level of adaptive functioning, adapted to the communication level of the participant
Sponsors
Koraal
University of Amsterdam
Zuyd University of Applied Sciences
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
A mixed-method repeated-measures design will be used: data are collected using both qualitative and quantitative methods at two points in time (before and after adaptation) from the same participants.
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Age 18 years or older * Last known Total Intelligence Quotient (TIQ) 55 - 85 * Receiving support from a care organization for persons with ID. * A care worker who knows the participant for at least a year and knows him well enough tot complete the informant version of the ABAS-3 is available.
Exclusion criteria
• Severe physical or sensory impairment limiting ability to participate.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Scoring comprehension - T0 | At baseline (T0) | Degree to which the qualitative information provided by the participant aligns with the self-reported score on the original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire. Outcomes are 0, scores align, -1, scores are lower than answer would suggest, +1, score is higher than answer would suggest. |
| Scoring comprehension - T1 | Approximately 8 weeks after baseline (T1) | Degree to which the qualitative information provided by the participant aligns with the self-reported score on the original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire. Outcomes are 0, scores align, -1, scores are lower than answer would suggest, +1, score is higher than answer would suggest. |
| Text comprehension - cognitive interviews T0 | At baseline (T0) | Level of verbal understanding of questions in the questionnaire - qualitative analysis of answers from cognitive interviews during assessment of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Terms and concepts that were misinterpreted, participant utterings of confusion of statements of difficulty |
| Text comprehension - cognitive interviews T1 | Approximately 8 weeks after baseline (T1) | Level of verbal understanding of questions in the questionnaire - qualitative analysis of answers from cognitive interviews during assessment of an adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Terms and concepts that were misinterpreted, participant utterings of confusion of statements of difficulty. |
| Comprehension of instructions - cognitive interviews T0 | At baseline (T0) | Level of verbal understanding of the instructions in the questionnaire - original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Number of elements that were correctly identiefied (out of possible 10). |
| Comprehension of instructions - cognitive interviews T1 | Approximately 8 weeks after baseline (T1) | Level of verbal understanding of the instructions in the questionnaire - adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Number of elements that were correctly identiefied (out of possible 10). |
| Overall difficulty score - T0 | At baseline (T0) | Likert scale rating of the overall difficulty of items of original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) by participants (from 1. very easy - 5. very difficult) |
| Overall difficulty score - T1 | Approximately 8 weeks after baseline (T1) | Likert scale rating of the overall difficulty of items of adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) by participants (from 1. very easy - 5. very difficult) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Self-reported Adaptive Functioning - original ABAS-3 scores | At baseline (T0) | The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning. |
| Self-reported Adaptive Functioning - adapted ABAS-3 scores | Approximately 8 weeks after baseline (T1) | The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning. The second time participants complete the ABAS (approximately 8 weeks after baseline, T1), an adapted version is used, with language and design adapted to the comprehension level of participants according to the outcomes at baseline (T0). |
| Informant-reported Adaptive Functioning - original ABAS-3 scores | At baseline (T0) | The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning. For the informant-report an adapted version of the original is used; the adaptations for the self-report version are replicated for the informant version. |
| Informant-reported Adaptive Functioning - adapted ABAS-3 scores | Approximately 8 weeks after baseline (T1) | The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning. For the informant-report an adapted version of the original is used; the adaptations for the self-report version are replicated for the informant version. |
| Self-reported Adaptive functioning - SCAF | At baseline (T0) | The SCAF (Screener for Adaptive Functioning) is a screening questionnaire for adaptive functioning for individuals who may have MID or BIF. The SCAF yields a total AF score (min 0 - max 24), with higher scores indicating better adaptive functioning. |
Countries
Netherlands
Contacts
PRINCIPAL_INVESTIGATORRoel Kooijmans, MSc
Koraal
Outcome results
None listed