In Depth Observational Clinical Trial Of Retinitis Pigmentosa Patients

Retinitis Pigmentosa Clinical Study: Examining the Clinical Trial Journey of Retinitis Pigmentosa Patients

Status

Not yet recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT05849987

Enrollment

500

Registered

2023-05-09

Start date

2024-05-31

Completion date

2026-05-31

Last updated

2023-05-09

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Retinitis Pigmentosa

Keywords

retinitis pigmentosa

Brief summary

Typically, clinical research participation favors a specific demographic group, and little research exists on how trial attributes affect participation. As such, this study seeks to analyze data from different demographic groups and check for recurring trends that could provide valuable insights for future retinitis pigmentosa patients.

Interventions

None listed

Study design

Observational model

CASE_CROSSOVER

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

* Is 18+ years old * Confirmed diagnosis of retinitis pigmentosa * Signed Written Informed Consent

Exclusion criteria

* Inability to perform regular electronic reporting * Participant is actively receiving study therapy in another trial * Women of childbearing potential without a negative pregnancy test; or women who are lactating.

Design outcomes

Primary

Measure	Time frame
Number of patient decides to enroll in clinical trial	3 months
Rate of patients who remain in clinical trial to trial completion	12 months

Contacts

Primary ContactMichael B Gill

bask@withpower.com4159004227

Outcome results