Chronic Disease, Somatic Disorders
Conditions
Brief summary
Little is known about the prevalence of risk behaviors (RBs), in adolescents living with a chronic condition (CC) Objectives Main objective: To characterize the engagement of adolescents with somatic CC recognized as ALD (SCC-ALD) into RBs, compared to the French GP Secondary objectives * To identify factors associated with RBs in adolescents with somatic CC-ALD * To elicit strategies of preventive action of RBs in adolescents with somatic CC-ALD Methods multicenter, cross-sectional survey , based on a mixed qualitative-quantitative approach with an explanatory sequential design (2 consecutive steps): STEP 1 : QUANTITATIVE COMPONENT * N expected =500 * Inclusion criteria : 14 to 18 years, With a SCC-ALD,Without cognitive impairment and/or psychiatric disease * Pseudonymised self-administered paper questionnaire (50 items) completed by eligible adolescents during a visit at referring hospital * statistical analysis : Comparative to the French GP: matching with two datasets (Enclass-HBSC 2022 and Portraits d'Adolescents 2013 surveys); identification of risk factors and risk subgroups STEP 2 : QUALITATIVE COMPONENT: Focus groups of adolescents with somatic CC-ALD (5 focus groups of 6-8 adolescents, conducted by a researcher in SHS) Perspectives CARMAC will : * Provide a better understanding of RBs in adolescents with severe somatic CC and * Help develop strategies to prevent RBs to enhance the strategies of reducing the addictions to psychoactive substances and health inequalities in this population * Serve as a methodological model for future studies
Detailed description
Little is known about the prevalence of risk behaviors (RBs), in adolescents living with a chronic condition (CC) Objectives Main objective: To characterize the engagement of adolescents with somatic CC recognized as ALD (SCC-ALD) into RBs, compared to the French GP Secondary objectives * To identify factors associated with RBs in adolescents with somatic CC-ALD * To elicit strategies of preventive action of RBs in adolescents with somatic CC-ALD Methods multicenter, cross-sectional survey , based on a mixed qualitative-quantitative approach with an explanatory sequential design (2 consecutive steps) STEP 1 : QUANTITATIVE COMPONENT * N expected =500 * Inclusion criteria : 14 to 18 years, With a SCC-ALD,Without cognitive impairment and/or psychiatric disease * Pseudonymised self-administered paper questionnaire (50 items) completed by eligible adolescents during a visit at referring hospital * statistical analysis : Comparative to the French GP: matching with two datasets (Enclass-HBSC 2022 and Portraits d'Adolescents 2013 surveys); identification of risk factors and risk subgroups STEP 2 : QUALITATIVE COMPONENT: Focus groups of adolescents with somatic CC-ALD (5 focus groups of 6-8 adolescents, conducted by a researcher in SHS) Perspectives CARMAC will : * Provide a better understanding of RBs in adolescents with severe somatic CC and * Help develop strategies to prevent RBs to enhance the strategies of reducing the addictions to psychoactive substances and health inequalities in this population * Serve as a methodological model for future studies
Interventions
Questionnaire risk behaviors in adolescents with chronic diseases
Sponsors
Study design
Eligibility
Inclusion criteria
* 14 to 18 years, living with a somatic chronic condition, recognized as an ALD (long duration disease)
Exclusion criteria
* cognitive impairment and/or psychiatric disease
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Prevalence of risky behaviors in adolescents with somatic chronic conditions recognized as ALD (SCC-ALD) compared to the French General Population | 6 months | prevalence of tobacco, cannabis and alcohol us, of risky sexuality, of dangerous games |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Factors associated with high prevalence of risky behaviors in of adolescents with somatic chronic conditions recognized as ALD (SCC-ALD) compared to the French General Population | 6 months | gender, age, social background, self-esteem, type of chronic condition, perceived burden of chronic condition (pain, treatment, social impact) |
Countries
France