Breast Cancer, Traumatic Brain Injury
Conditions
Brief summary
At present, there is no empirical data that specifies the likely prevalence of purpose in life disruption among various clinical populations. Between one-third and one-half of cancer survivors report some degree of existential distress during or after their treatment, but these findings are not specific to the domain of purpose in life. To address the aforementioned gap, we propose to conduct a survey study to determine the prevalence of purpose disruption in two clinical populations and determine if the prevalence of purpose disruption in these populations is different from that of a normative population.
Interventions
OTHERSurvey
Completion of a Purpose in Life Survey
Sponsors
Mary Radomski
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Age 18+ * Stage 1, 2, 3 cancer * Cancer types: breast cancer, non-Hodgkin's lymphoma; colorectal cancer * Receiving oncology services or treatment through AHCI * Have completed primary cancer treatment within the past 12 months * Able to communicate in English; * Able to see and read (with or without assistive devices); * Has access to a device (computer, phone, tablet) and an email address; * Access to an internet connection. * Has a known email address (in EPIC) and/or home telephone number * Adults who sustained a traumatic brain injury within the past 12 months. * Attending the 2022 MN State Fair
Exclusion criteria
* Have declined consent for use of medical records in research during admission to AH facility
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Purpose Status Question | Through Study Completion, about 15 minutes | A single forced-choice self-report screener question that we developed in order to characterize existential distress related to purpose in life (PSQ: Related to living with purpose in life, right now I am: moving backwards; stalled; figuring it out; moving forward on a path). |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Work and Adjustment Scale | Through Study Completion, about 15 minutes | A 5-item self-report questionnaire to characterize functioning related to work, social life, leisure, home management, and relationships. |
| Meaning in Life Questionnaire | Through Study Completion, about 15 minutes | A 10-item questionnaire designed to measure 2 dimensions of meaning in life: Presence of Meaning (how much respondents feel their lives have meaning) and Search for Meaning (how much respondents strive to find meaning and understanding in their lives). |
| Life Engagement Test | Through Study Completion, about 15 minutes | A 6-item self-report questionnaire that captures the extent to which a person engages in activities that are personally valued. |
Countries
United States
Outcome results
None listed