Caregiver Burden
Conditions
Keywords
audio storytelling, informal caregivers, digital narratives
Brief summary
Pilot testing the feasibility of the Transformative Audio Storytelling approach for informal caregivers, as an innovative method for delivering potentially empowering mental health narratives.
Interventions
BEHAVIORALAudio Storytelling
The audio session is designed to deliver audio narrative developed following the Transformative Storytelling Technique and provide re-structurization of internal caregiver self-stories.
Sponsors
European Union
Istituto Auxologico Italiano
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
pre-post
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Informal caregiver (family members or significant other person who provides primary care for the patients visiting or being hospitalized in the Rehabilitation Ward) * Age ≥18 years * Native speaker of the Italian language * Having voluntarily agreed to participate in the study and having signed the informed consent in all its points.
Exclusion criteria
* Informal caregiver for children * Informal caregiver who does not personally play this role (primary caregiver) * Informal caregiver of adults with a tumor pathological condition
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Sense of Coherence Scale revised (SOC-R) | pre-post (15 minutes) intervention | The SOC-R is a tool composed of 13 items on a 5-point Likert scale ranging from 1 - Not at all true to 5 - Extremely true. |
| Cognitive Emotion Regulation Questionnaire (CERQ) | pre-post (15 minutes) intervention | The CERQ is a questionnaire composed of 27 items, consisting of 5-step Likert scales, from 1 - almost never to 5 almost always |
| Perceived Stress Scale | pre-post (15 minutes) intervention | The PSS is a questionnaire consisting of 10 items, on a 5-step Likert scale, ranging from 0, Never to 4, Very Often. A total score of the 10 items provides a general measure of perceived stress. PPS items rate thoughts and feelings about the past month. |
| Burden Scale for Family Caregivers - Short Form (BSFC-s) | pre-post (15 minutes) intervention | The BSFC-s is a 10-item 4-step Likert scale ranging from (0) Strongly disagree to (4) Strongly agree. |
| Meaning in Life (MLQ) | pre-post (15 minutes) intervention | The MLQ is a questionnaire composed of 10 items to evaluate meaning of life. The MLQ uses 7-step Likert scales from 1 Absolutely true to Absolutely not true. |
| Facial expressions responses (Noldus FaceReader) | during 15 minutes intervention session | this facial expression recognition software includes the evaluation of six basic expressions and then calculates the drive, valence, arousal, gaze direction, head orientation and other additional characteristics such as age and the sex |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Feedback on the perceived value of audio storytelling | after 15 minutes intervention sessions | this facial expression recognition software includes the evaluation of six basic expressions and then calculates the drive, valence, arousal, gaze direction, head orientation and other additional characteristics such as age and the sex |
Countries
Italy
Outcome results
None listed