How Would the Creation of a Follow-up Methodology in Consultation Improve the Care of the Epileptic Patient?

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT05741541

Acronym

MAPE

Enrollment

Registered

2023-02-23

Start date

2023-02-24

Completion date

2023-04-29

Last updated

2023-06-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Epilepsy

Brief summary

The goal of this observationnal study is to identify the informative and educational needs of epilepsy patients to avoid interrupting the therapeutic pathway. The main question it aims to answer are : * Identify the patient's expectations of a nurse specializing in epilepsy in the areas of information, predictive elements of good care and adaptation to their state of health * Identify under-addressed or misunderstood themes * Identify patient resources and interventions already in place * Ensuring better continuity of care * Improve the knowledge of patients and their relatives about the management of their pathology After a consultation with the neurologist (as part of their usual follow-up), the participants will be referred to a nurse for a semi-directive, individual interview, lasting 30 minutes and composed of open and closed questions. The announcement of the diagnosis, the quality of life or the factors contributing to the difficulties and their repercussions on a daily basis will be discussed during the interview.

Interventions

None listed

Study design

Observational model

OTHER

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Inclusion criteria

* Adult epileptic patients, over 18 years old * Patients with focal or generalized epilepsy * Patients affiliated or entitled to a social security scheme * Patients who have received informed information about the study and who have co- signed, with the investigator, a non-objection to participation in the study * Patients whose diagnosis has been made for at least 6 months

Exclusion criteria

* Patients with intellectual disabilities * Minors * Untreated patients, in remission * Patients without affiliation to a social security scheme * Patients under guardianship or curatorship

Design outcomes

Primary

Measure	Time frame
Identify the informative and educational needs of epileptic patients to avoid disrupting the therapeutic course by an interview with an nurse.	At inclusion

Countries

France

Outcome results