Rheumatoid Purpura
Conditions
Brief summary
The main objective of this study is to describe the management of children with rheumatoid purpura from admission to the pediatric emergency room to follow-up by primary care physicians after hospital discharge.
Detailed description
Secondary objectives The secondary objective is to assess general practitioners current knowledge and practice of the condition and potential barriers to monitoring and follow-up by general practitioners. Conduct of research Children diagnosed with rheumatoid purpura within the past 2 years at the 3 participating sites will be included in the study if parental authority holders do not object. Patients will be identified through the Medical Information Department of each hospital. Parents will be contacted - first by mail, then by phone - to request permission to collect the child's medical data from medical records, and to retrieve information on the surveillance and follow-up of the disease by general practitioners up to two years after diagnosis.
Interventions
OTHERManagement of rheumatoid purpura
Collection of data on the management in pediatric emergency departments (method of diagnosis, complementary examinations, proposed treatment, number of hospitalizations, follow-up after hospital discharge).
Sponsors
Groupe Hospitalier de la Region de Mulhouse et Sud Alsace
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
0 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Underaged patient diagnosed with rheumatoid purpura during a visit to the pediatric emergencies of Mulhouse, Colmar and Strasbourg * No objection to the study from the two holders of parental authority
Exclusion criteria
\- Patient followed in the context of a genetic or malformative pathology, an immune deficiency, or a cancer
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Compliance with the recommendations for the management of rheumatoid purpura | Up to two years after hospital discharge |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Knowledge assessment questionnaire regarding rheumatoid purpura | At the beginning of the study | Evaluation of the knowledge and current practices of general practitioners regarding rheumatoid purpura and identification of the possible obstacles to management and follow-up in primary care, using an online survey |
Countries
France
Outcome results
None listed