Cleft Lip and Palate
Conditions
Keywords
Cleft Lip and Palate, Challenges, Concerns
Brief summary
Cleft lip and/or palate (CLP) are the most common oro-facial congenital anomalies. These anomalies have an impact on feeding, speech and speech development, facial aesthetics & oral health, all of which are factors that heavily impact the quality of life of CLP patients. CLP also has an effect on the families' social and psychological health. Qualitative research helps understand the perspectives of the participants by exploring the psycho-social aspects of care. Phenomenological approach is a qualitative research method that aims to borrow participants' lived experiences to better understand a specific phenomenon. Currently, there is no clear understanding of the fears, anxieties, and challenges faced by parents of CLP patients in Egypt.
Interventions
DIAGNOSTIC_TESTInterview- based questionnaire
Interview-based questionnaire by the use of an interview guide to explore and understand the Challenges faced in the past and the concerns for the future experienced by parents of CLP patients.
Sponsors
Ain Shams University
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* Parents of Patients with non-syndromic CLP.
Exclusion criteria
* Parents of Patients presenting with dental pain.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Challenges & concerns faced by the parents of CLP patients | 1 year | The tool of measurement in the present qualitative study is In-depth interviews utilizing an interview guide (questionnaire). The recorded interviews will be transcribed by one of the authors after which thematic data analysis will be conducted. Codes will be developed by two researchers individually and intercoder meetings will held to encourage intercoder reliability. |
Countries
Egypt
Outcome results
None listed