Heart Failure
Conditions
Keywords
Peer Support Mentorship, Pediatrics, Adherence, Cardiomyopathy
Brief summary
The iPeer2Peer (iP2P) program is an online peer support mentorship program that provides modelling and reinforcement by trained young adult peer mentors to adolescent mentees with the same condition. A quasi-experimental single-arm pre-post study design will be employed across three sites. We will recruit 40 mentees (12-17 years of age) and 12-15 mentors (18-30 years of age) who will undergo training in mentoring and the use of eHealth technology. Mentor-mentee pairings will connect over 15 weeks through video calls and text messaging to provide peer support and encourage disease self-management skills. Data will be collected using standardized instruments and interviews across three time points.
Interventions
BEHAVIORALiPeer2Peer Program
Behavioral: iPeer2Peer Support Mentorship Program is an online peer support mentorship program that has been established in multiple chronic disease populations as a self-management intervention, including chronic pain and juvenile idiopathic arthritis. The iPeer2Peer program provides modeling and reinforcement by pre-screened and trained young adult peer mentors to adolescent mentees.
Sponsors
The Centre Hospitalier Universitaire Sainte-Justine
University of Alberta/Stollery Children's Hospital
The Hospital for Sick Children
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER
Masking
NONE
Intervention model description
Quasi-experimental single arm pre-post study
Eligibility
Sex/Gender
ALL
Age
12 Years to 30 Years
Healthy volunteers
No
Inclusion criteria
Mentee inclusion criteria: 1. patient with a cardiac diagnosis, 2. at least 4 months post-diagnosis, 3. between the ages of 12 and 17 years, 4. able to speak and read English, and 5. willingness to commit to 5-10 texts and/or calls of 20-30 minutes each with a peer mentor over a period of 15 weeks. Mentor inclusion criteria: 1. patient with a cardiac diagnosis, 2. between the ages of 18 and 30 years, 3. able to speak and read English, 4. nominated by a member of their health care team as a good mentor based on maturity and emotional stability, 5. willingness to commit to peer mentor training (20 hours) via the PHIPA-compliant version of Zoom or Microsoft Teams and mentoring adolescent participants (once paired with mentee, 5-10 texts and/or calls of 20-30 minutes over a period of 15 weeks), 6. good communication skills (as assessed by a healthcare provider), and 7. previous experience in a professional environment (e.g., as a camp counsellor, part time job, volunteering) is an asset.
Exclusion criteria
1. significant cognitive impairments as assessed by a qualified healthcare provider, 2. a diagnosis of an active psychological disorder (e.g., Major Depressive Disorder, Generalized Anxiety Disorder) likely to influence assessment of health-related quality of life and/or interfere with their ability to manage their heart failure care regimen (a diagnosis of an active psychological disorder will be determined for mentees through medical chart review and self-reported by mentors), and 3. participating in other peer support or self-management interventions.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Level of engagement (Mentors) | Study completion, an average of 1 year | — |
| Acceptability (Mentees) | 15 weeks after baseline/immediately after the intervention | Whether the innovation is agreeable, palatable or satisfactory |
| Acceptability (Mentors) | Study completion, an average of 1 year | Whether the innovation is agreeable, palatable or satisfactory |
| Adoption (Mentees) | Baseline to 12 weeks post-program completion | The intention, initial decision or action to try or use an innovation |
| Adoption (Mentors) | Baseline to study completion, an average of 1 year | The intention, initial decision or action to try or use an innovation |
| Feasibility (Mentees) | Baseline to 12 weeks post-program completion | The extent to which an innovation can be used or carried out successfully in a given setting |
| Feasibility (Mentors) | Baseline to study completion, an average of 1 year | The extent to which an innovation can be used or carried out successfully in a given setting |
| Appropriateness (Mentees) | Baseline to 12 weeks post-program completion | The perceived fit, relevance or compatibility of the innovation for a practice setting; and/or its perceived fit to address an issue or problem |
| Appropriateness (Mentors) | Baseline to study completion, an average of 1 year | The perceived fit, relevance or compatibility of the innovation for a practice setting; and/or its perceived fit to address an issue or problem |
| Level of engagement (Mentees) | 15 weeks after baseline/immediately after the intervention | — |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Perceived social role satisfaction (Mentors) | Baseline to study completion, an average of 1 year | — |
| Self-efficacy (Mentors) | Baseline to study completion, an average of 1 year | — |
| Quality of life (Mentees) | Baseline to 12 weeks post-program completion | — |
| Perceived social support (Mentees) | Baseline to 12 weeks post-program completion | — |
| Emotional distress (Mentees) | Baseline to 12 weeks post-program completion | — |
| Resiliency (Mentees) | Baseline to 12 weeks post-program completion | — |
| Assessment of mentor quality (Mentees) | 15 weeks after baseline/immediately after the intervention | — |
| Physical and emotional symptoms (Mentors) | Baseline to study completion, an average of 1 year | — |
| Disease self-management skills (Mentees) | Baseline to 12 weeks post-program completion | — |
| Adherence (Mentees) | Baseline to 12 weeks post-program completion | Clinic attendance, completion of scheduled tests and procedures, and adolescent medication barriers scale |
Countries
Canada
Contacts
Primary ContactSamantha J Anthony, PhD
Backup ContactSophie Bui, BHSc
Outcome results
None listed