Rheumatic Disorder
Conditions
Keywords
Rheumatic diseases, living will
Brief summary
The living will is a legal document derived from a communication and deliberation process, medical ethical aspect, currently regulated in Mexico by the General Health Law and the Health Law of Mexico City. Knowledge of living will in the population with chronic diseases, including rheumatic diseases, has been little addressed. Most patients do not know what the living will document is, so they do not carry it out and others, despite knowing it, have a passive attitude toward doing it.
Detailed description
A study will be carried out on patients with rheumatic diseases and healthy family controls. Patients will be selected from those attending the Department of Immunology and Rheumatology in Mexico City outpatient department, including consecutive cases. The patients will be assessed for their quality of life and disability. Patients and controls will be evaluated on the knowledge of living will, their perceptions about specific health outcomes, sociodemographic characteristics, comorbidities, and psychiatric pathology.
Interventions
The HAQ is based on five patient-centered dimensions: disability, pain, medication effects, costs of care, and mortality
DASS-21 is a set of three self-report scales designed to measure the emotional states of depression, anxiety, and stress. Each of the three DASS-21 scales contains 7 items, divided into subscales with similar content
Brief Resilient Coping Scale is a 4-item measure designed to capture tendencies to cope with stress in a highly adaptive manner
OTHERWHOQOL-BREF
WHOQOL-BREF is a 26-item instrument consisting of four domains: physical health, psychological health, social relationships, and environmental health; it also contains QOL and general health items
RAPID- 3 measures: function, pain, and patient global estimate of status. Each of the 3 individual measures is scored 0 to 10, for a total of 30
OTHERRheumatic disease comorbidity index
It is rated from 0 to 9 and comprises 11 comorbid conditions including lung disease, cardio-vascular disease, hypertension, diabetes, fracture, depression, cancer, and gastrointestinal ulcer
OTHERLiving will questionnaire
A questionnaire with 17 items about knowledge of the living will.
OTHERPerceptions of Health Outcomes Questionnaire
A questionnaire with 7 items about the probability of quitting the job, getting an infectious disease, requiring emergency medical attention, hospitalization or intensive care, dependence and death.
Sponsors
National Institute of Medical Sciences and Nutrition, Salvador Zubiran
Study design
Observational model
CASE_CONTROL
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to 100 Years
Healthy volunteers
Yes
Inclusion criteria
Cases * Patients with a rheumatic disease diagnostic by a rheumatologist * Patients with rheumatic diseases attending the Department of Immunology and Rheumatology in Mexico City outpatient department * Patients who agree to participate in the study, who complete and sign the informed consent Controls * Relative of a patient with rheumatic diseases of the same sex and age ± 5 years, without known rheumatic and/or chronic disease and without the use of pharmacological treatment for more than 7 days during the month before study entry.
Exclusion criteria
Cases * Patients with severe diseases or in palliative care by a rheumatologist Controls \- Withdrawal of the study
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Knowledge of the living will with the living will questionnaire (locally development) | 1 day At study inclusion (After their rheumatology consultation) | To evaluate the knowledge of the living will, using the living will questionnaire (locally development), among the patients with rheumatic diseases and healthy controls. |
| Perceptions of Health Outcomes with the perceptions of health outcomes questionnaire (locally development) | 1 day At study inclusion (After their rheumatology consultation) | To evaluate the perceptions of the of health outcomes using the perceptions of health outcomes questionnaire (locally development), among the patients with rheumatic diseases and healthy controls |
Countries
Mexico
Contacts
Primary ContactVirginia Pascual-Ramos, Dr.
Outcome results
None listed