Epilepsy
Conditions
Keywords
Epilepsy, Knowledge and Attitude, Quality of life
Brief summary
Epilepsy is a common neurological condition that affects personal and familial behavior and social support . About 50 million people worldwide suffer from epilepsy and the prevalence of active epilepsy in developing countries is 5 to 10 per 100 persons . Individuals with epilepsy may suffer from psychological issues such as depression, anxiety, and psychosis . Accordingly, living with a person with epilepsy will provide some challenges, particularly at home. Studies have reported that relatives of people with epilepsy have an increased risk of anxiety. Epilepsy can inflict an enormous burden on both the people with epilepsy (PWE) and their family caregivers, decreasing their quality of life and daily efficiency.
Interventions
OTHERQuestionnaire about Epilepsy
After obtaining informed consent, a structured questionnaire will be administered to the accompanying relative. The questionnaire consists of 5 sections: participants socio-demographic characteristics, patient demographic and clinical characteristics, participants knowledge about epilepsy including sources of knowledge and management of an acute seizure, general attitudes, and behaviors towards the People with epilepsy, Stigma scale of epilepsy.\[14\], and Quality of life in epilepsy-10 inventory (QOLIE-10) as the main data collection tool as regard quality of life of patients with epilepsy.
Sponsors
Mohamed Adel Abdellah
Study design
Observational model
CASE_ONLY
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
16 Years to 110 Years
Healthy volunteers
Yes
Inclusion criteria
* The participants Will be the close relatives of people with epilepsy who had a close relationship with the patient and living in the same house. The respondents will include the mothers, fathers, brothers, sisters, or the husband/wife, sons of patients. The patients will be patients diagnosed of epilepsy for at least 6 months, who were using antiepileptic drugs.
Exclusion criteria
* The Relatives not living in the same house or not in direct contact with the patients or younger than 16 years old will be excluded from the study. The persons who had major medical or mental health problems other than epilepsy that would affect QOL will be excluded.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Quality of life of people with epilepsy. | 1 year | We will use the Quality of life in epilepsy-10 inventory (QOLIE-10) as the main collection tool as regard quality of life of people with epilepsy. |
| Knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy. | 1 year | This study will be conducted to assess the degree of knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy. A structured questionnaire will be administered to the accompanying relative. The questionnaire will assess this knowledge and the sources that close relatives obtain this knowledge from, including general attitude towards the People with epilepsy, and contains section that assess sigma about epilepsy using Stigma scale of epilepsy. |
Countries
Egypt
Contacts
Primary ContactMohamed A Abdellah, resident
Backup ContactHassan Mohamed Elnady, Professor
Outcome results
None listed