Palliative Care
Conditions
Keywords
Palliative care, Advance care planning, Anticipatory prescribing, End of life, Patient experiences
Brief summary
The question of the end of life is a major public health issue. In the field of palliative care, the notion of anticipation is central for people with a serious and progressive illness. Indeed, an important consideration for general practitioners is the need to anticipate the disease's evolution and the uncomfortable symptoms (physical or psychological) the patient is likely to experience. This approach aims to relieve the patient without delay and thus improve comfort to ensure an acceptable quality of life for patients and their families. Even if the usefulness of anticipatory prescribing seems obvious, their use is not generalized to all palliative care patients. Caregivers are confronted with obstacles to the implementation of these prescriptions, particularly with regard to the relationship with the patient. It can then be assumed that patients' experiences and perceptions may influence symptom management and the use of anticipatory prescriptions. It seems essential to explore this subject. For this purpose, the investigator will carry out a qualitative study based on individual semi-structured interviews with palliative care patients.
Interventions
BEHAVIORALIndividual semi-structured interviews
After information and written consent, the investigator will interview the participants through a semi-structured individual interview (conducted by an interview guide). The interview is expected to last 45 minutes (variable depending on the subject). It will be recorded by dictaphone, respecting the anonymity of the participant throughout the interview. The subject's participation will end after the interview.
Sponsors
Hospices Civils de Lyon
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Persons of all genders * Persons 18 years of age and older * In a palliative care situation of any serious illness * Persons hospitalized in palliative care unit at the Givors hospital or followed at home by the Mobile Palliative Care Team * Patients who have received full information about the study and signed a written consent.
Exclusion criteria
* Persons under legal protection * Persons unable to express their consent, making it impossible to conduct interviews: dysarthria, cognitive disorders, mental confusion, altered state of consciousness * Pregnant or breastfeeding persons
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| The primary outcome is patient views on the use of anticipatory prescribing. | The outcome will be collected at Day 1-End of study visit | The interview consists in exploring the participants' experiences (feelings, representations), expectations and difficulties concerning the use of anticipatory prescribing. Interviews will be audio recorded. The verbatim will be transcribed for qualitative analysis by inductive thematic type, in order to bring out the main ideas and hypotheses. |
Countries
France
Contacts
Primary ContactManon JULLIAN
Backup ContactJulien TRAUTMANN, MD
Outcome results
None listed