Breast Cancer
Conditions
Brief summary
ShareForCures (SFC) is a community-based participatory research registry, and its prime objective is to engage participants representative of the United States breast cancer patient population -including minoritized and historically marginalized people, persons, or communities-to ensure the data researchers use to study breast cancer is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer, and everyone can potentially benefit from scientific advances and improvements in care.
Detailed description
ShareForCures (SFC) will be a people-powered, data-driven breast cancer registry that will provide a way for individuals from diverse backgrounds to participate in research and enable participants' data to be used for breast cancer research. The overarching goal of SFC is to create a robust research resource comprised of clinical, biological, socio-behavioral, and other data from up to 200,000 people with breast cancer-including minoritized and historically marginalized people, persons, or communities-to ensure the data, researchers use to study breast cancer, is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer and everyone can potentially benefit from scientific advances and improvements in care.
Interventions
None listed
Sponsors
Susan G. Komen Breast Cancer Foundation
Study design
Observational model
OTHER
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Individuals must be at least 18 years old. (Individuals in Alabama and Nebraska must be over 19 and individuals in Mississippi and Pennsylvania must be over 21 to participate). * Individuals must have been diagnosed with cancer originating (or is suspected to originate) from the breast. * Individuals must be currently residing in the United States or a territory of the United States. * Individuals must be able to read and understand English.
Exclusion criteria
* Individuals under the age of 18 years. (Individuals in Alabama and Nebraska under 19 and individuals in Mississippi and Pennsylvania under 21 are not eligible to participate). * Individuals without a diagnosis of breast cancer. * Individuals who are not residing in the United States or a territory of the United States. * Individuals unable to read and understand English.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Engage participants representative of the United States breast cancer patient population in ShareForCures. | 10 years | Enroll and engage up to 200,000 people, who have been diagnosed with breast cancer, reflecting the diversity of breast cancer survivors within the United States, to participate in the registry as our partners in research. |
| Integrate participant data into ShareForCures. | 10 years | Collect and curate a rich scope of participant data from a variety of sources (including participant-provided information, clinical records, and linkage to other existing datasets) and biospecimens to create a comprehensive, longitudinal database. |
| Facilitate scientific research using ShareForCures data. | 10 years | Make deidentified data available to researchers for scientific discoveries, including research that may lead to new knowledge about breast cancer and advances in patient care and outcomes. |
Countries
United States
Contacts
CONTACTJerome Jourquin, Ph.D., M.S.
PRINCIPAL_INVESTIGATORJerome Jourquin, Ph.D., M.S.
Susan G. Komen
Outcome results
None listed