Family, Fathers, Stress
Conditions
Brief summary
Based on findings from our prior trials with parents of children with learning and attentional disabilities and parents of children with autism spectrum disorder (Kuhlthau et al., 2020; Park et al., 2020; IRB approved: #:2016P001622 and 2016P002037 respectively), the investigators propose to pilot test and refine the adapted resiliency intervention (SMART-3RP) among fathers of children with special health care needs.
Detailed description
This is an open pilot study. Based on Phase I findings (IRB #2021P002838), the investigators propose to enroll up to 12 fathers (in 2 groups) of children and youth with special health care needs (CYSHCN) in the adapted SMART-3RP intervention. The SMART-3RP is an 8-session mind-body resiliency intervention that will be conducted virtually. Participants will complete the study survey at baseline and immediately following the intervention. As this is a pilot, participants will also be asked to provide weekly feedback on program sessions and participate in an exit interview following the intervention. The intervention may be iteratively modified as the investigators receive feedback from participants.
Interventions
BEHAVIORALRelaxation Response Resiliency Program for Father of CYSHCN
Virtually delivered psycho-educational resiliency training program for fathers of CYSHCN
Sponsors
Massachusetts General Hospital
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER
Masking
NONE
Intervention model description
We ran two groups of a resiliency intervention.
Eligibility
Sex/Gender
MALE
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Self-reported identify as father or male guardian of at least one child with special health care needs (e.g., autism spectrum disorder, cerebral palsy, dyslexia) * Age 18 or older * Ability to participate in group, virtual sessions including access to computer, tablet, or smartphone and internet.
Exclusion criteria
* unable to speak or read English * unwilling or unable to participate in the study * considered medically or otherwise unable to participate by the study PI.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Feedback regarding adapted intervention acceptability by session | 6 months | Likert ratings on post-session feedback surveys (0 to 5 with 5 more acceptable), qualitative responses from exit interviews |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Feasibility (attendance at 6/8 sessions) | 8 weeks | Feasibility will be assessed using attendance (i.e. 6/8 sessions). |
| Feasibility (data collection number completing study surveys) | 3 months | Feasibility will be assessed using number of dads completing study surveys |
| Acceptability helpfulness ratings of sessions and aspects of program | 3 months | Acceptability will be assessed using a Participant Feedback questionnaire: questionnaire includes ratings of session helpfulness (1 to 5 with 1 being very helpful and 1 being not at all helpful), likert ratings of program aspects (number, length, etc of sessions), and open-ended qualitative feedback questions. |
Countries
United States
Outcome results
None listed