End Stage Renal Disease
Conditions
Brief summary
Peer mentoring is an approach used to support patients through their experience. In the End Stage Kidney Disease community many patients find out about their kidney failure without warning. This study is designed to test the feasibility of a structured peer support program, specifically, patient uptake, engagement and patient and staff perspectives.
Interventions
BEHAVIORALMentoring
At least one meeting between the mentor and mentee will occur to share experiences and see if the mentee would like to continue meeting with a mentor
Sponsors
Satellite Healthcare
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
We aim to conduct the study over 6 to 12 months to obtain enough experience to enable feasibility evaluation. Mentor pool sample size: We anticipate having about 10 patients in the mentors' pool during the study period. Mentee sample size: We anticipate approaching between 20 to 30 dialysis patients over the study period. Supporting team: All members of the supporting staff will be invited to participate.
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Mentor Patient Participants Inclusion criteria: * Patients living with dialysis or kidney transplant, who volunteer to support other patients. * Mentor participants agree to complete the CMS End Stage Renal Disease Network Peer Mentoring training program (https://www.kidneylearninghub.com/patients-peer-mentoring-program/ ) and follow the guidelines for participation in the program. Mentor Patient Participants
Exclusion criteria
* Age \<18 years. * Patient cannot communicate in English. * Concerns raised by the clinical team that may expose the mentor, mentee, staff, or the program to risks, as identified by the clinical team and discussed with the principal investigator. Mentee Patient Participants Inclusion criteria: * All incident (new) dialysis patients or their care partners, within the first three months of dialysis. OR * Prevalent dialysis patients or their care partners identified by the clinical team to need peer support. Mentee Patient Participants
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Mentor | 6 - 12 months | Number of patients registering to become mentors, percent of those registered completing mentor training and percent of trained mentors who meet at least one mentee. |
| Mentee | 1 month | Number and proportion of patients starting dialysis, or prevalent dialysis patients identified by the clinical team to need peer support, who receive an introductory peer mentor visit. Number and % of mentees who indicate interest to continue with more peer mentoring visits. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Mentor Perspectives | 6-12month | Evaluation of recruitment, training and program. Data collection will be through the Mentor Recruitment and Training Evaluation form and through focus group discussions |
| Mentee Perspectives | 1-4 weeks | Peer Mentorship Program Evaluation - Mentee form to be completed by the mentee to collect data on the mentees perspective of the program |
| Support Staff Perspectives | 3,6,9 and 12 months | Peer Mentorship Program Evaluation - Staff to be completed by the center staff to collect data on their perspective of the program |
| Mentor - Mentee Matching | 1 month | Preferences about matching (n and % for age range, gender, race, language, social conditions, specific dialysis experiences \[e.g. Peritoneal Dialysis / Home HemoDialysis / transplant\], and others). |
Countries
United States
Outcome results
None listed