Disability or Chronic Disease Leading to Disablement
Conditions
Keywords
Neuromotor Disability, Neuro-Orthopaedics
Brief summary
People with neuromotor disability (i.e. following an inborn or acquired spinal cord, cerebral or peripheral neurological lesion) are at risk of worsening their neuro-orthopaedic disorders during aging, including fracture risk. Nevertheless, at the present time, the natural evolution of their neuro-orthopedic disorders and the long-term functional impact of their medical and surgical treatments is unknown. The aim of this study is to describe neuro-orthopedic disorders during aging of patients with neuromotor disability, their functional repercussions, their comorbidities and the therapeutic strategies used.
Detailed description
This is an ambispective, monocentric, cohort study of subjects with neuromotor disability followed in a Physical Medicine and Rehabilitation Department. All consecutive eligible inpatient and outpatient subjects treated in the Neuro Orthopaedic Unit (UPOH) of the Physical Medicine and Rehabilitation Department of our university hospital will be included. Data will be collected from the patients' medical records, in particular data related to their clinical, radiological, biological and physiological examinations.
Interventions
OTHERstandard of care for patients with neuromotor disability
clinical examination, radiological, biological and physiological examinations.
Sponsors
Assistance Publique - Hôpitaux de Paris
Institut de Sante Parasport Connecte Synergies
Study design
Observational model
COHORT
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Patients \>= 18 years old ; * Treated in the Neuro Orthopaedic Unit (UPOH) of the Physical Medicine and Rehabilitation Department of our university hospital ; * Having a neuromotor disability ; * No opposition to be enrolled in the study from the patient, or from a legally authorized close relative if the patient's state of health does not allow it ; * Affiliation to a social security scheme.
Exclusion criteria
* Under court protection.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Evolution of mobility during aging | Through study completion, an average of 1 year | Walking range |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Prevalence of falls and fractures | Through study completion, an average of 1 year | Number and description of falls and fractures |
| Characteristics of infiltrative procedures and surgeries | Through study completion, an average of 1 year | Number and description of infiltrative procedures and surgeries |
| Changes of devices (orthoses and prostheses) and technical aids used during aging | Through study completion, an average of 1 year | Number and description of devices (orthoses and prostheses) and technical aids |
| Prevalence of pressure sores | Through study completion, an average of 1 year | Number and description of pressure sores |
| Evolution of comorbidities during aging | Through study completion, an average of 1 year | Prevalence of comorbidities (e.g. obesity, diabetes, hypertension, sleep apnea, ...) |
| Medication | Through study completion, an average of 1 year | Medication list |
| Changes of physical activity, as well as barriers and facilitators to physical activity, during aging | Through study completion, an average of 1 year | Questionnaires assessing physical activity levels (ex: PASPID) and barriers and facilitators to physical activity (ex: BPAQ) |
Countries
France
Contacts
Primary ContactFrançois Genêt, MD-PhD
Backup ContactVincent T Carpentier, MD-MSc
Outcome results
None listed