Bronchopulmonary Dysplasia
Conditions
Keywords
Bronchopulmonary Dysplasia, NICU Discharge
Brief summary
The researchers have worked to create consensus recommendations among national efforts to help with the transition and coordination of care for preterm infants with lung disease around discharge from the neonatal intensive care unit to home. This study looks to evaluate implementation of the recommendations at Boston Children's Hospital and referring NICU's (Beth Israel Deaconess Medical Center and Brigham and Women's Hospital). Specifically, the research team will be looking at follow-up rates, healthcare utilization, and parental satisfaction/feedback with implementation of these guidelines.
Detailed description
Premature infants with bronchopulmonary dysplasia (BPD) have complex care needs around discharge. BPD affects up to 40% of former preterm infants born at \<28 weeks gestation, with about 10,000 new cases of BPD in the United States every year. Healthcare utilization in this population in the first two years of life is high, with increased hospitalizations, visits, and medication usage. Coordinated follow-up programs may help improve outcomes and reduce rates of hospitalization in this population. However, guidelines do not exist to identify which infants discharging from the NICU should be targeted for specialty follow-up for their respiratory disease, the time frame and format that this should occur, and which evaluations should be performed routinely around discharge. This will be an implementation study, measuring outcomes 3 months prior and 3 months after enactment of a discharge bundle for preterm infants with BPD at local NICUs (Brigham and Women's Hospital, Beth Israel Deaconess Medical Center) who will be followed by Boston Children's Hospital.
Interventions
None listed
Sponsors
Boston Children's Hospital
Beth Israel Deaconess Medical Center
Brigham and Women's Hospital
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
0 Days to 1 Years
Healthy volunteers
No
Inclusion criteria
* Preterm infants born \<32 weeks with at least mild BPD, defined as 28 days of respiratory support after birth. * Efforts will be made to include a mix of infants with mild, moderate, and severe BPD, including infants discharged on oxygen.
Exclusion criteria
* Discharge to a location other than home. * Infants with other congenital disease (cardiac, genetic, neurological) thought to contribute significantly to their respiratory disease.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Healthcare Utilization | 8 months | Review of emergency encounters, urgent care visits, and hospital readmissions in the first 6 months after NICU discharge. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Rates of pulmonary follow-up and use of telemedicine in follow-up | 8 months | Review of medical record |
| Completion of recommended evaluations and testing | 8 months | Review of medical record |
| Medication use | 8 months | Review of medical record |
| Home oxygen use | 8 months | Review of medical record |
| Feeding | 8 months | Review of medical record |
| Family satisfaction with care for respiratory symptoms around and after discharge | 8 months | Assessed by surveys |
Countries
United States
Contacts
CONTACTJonathan Levin, MD
CONTACTVanessa J Young
PRINCIPAL_INVESTIGATORJonathan Levin, MD
Boston Children's Hospital
Outcome results
None listed