Quality of Life
Conditions
Keywords
neuroendocrine neoplasms
Brief summary
Neuroendocrine tumors (NET) are rare tumors that require specific diagnosis and treatment. Therefore, this poses a challenge for clinical practice. Diagnosis and treatment can be optimized when physician specialists and other healthcare providers, across various hospitals, join forces to provide patients the best care. Based on this idea, a hospital network called NETwerk was set up. The following hospitals are part of this network: University Hospital Antwerp, VITAZ, AZ Monica, AZ Voorkempen, AZ Klina, Gasthuiszusters Antwerpen, Ziekenhuis Netwerk Antwerpen and AZ Rivierenland. In this NETwerk, patients with a neuroendocrine tumor or patients suspected with a neuroendocrine tumor are discussed with the specialists and treated.The aim of this study is to map the quality of life of NET patients within NETwerk in order to optimize the quality of care. Throughout the diagnosis, the treatment process and the follow-up, the patient will be asked to fill out three questionnaires (QLQ-C30, QLQ-GI.NET21 and a satisfaction survey). These questionnaires will be filled out every six months at home. Patients will be asked to complete these questionnaires over a period of five years.
Interventions
PROCEDUREEORTC QLQ-C30
Quality of life questionnaire that has to be completed every 6 months
PROCEDUREEORTC QLQ-GI.NET21
Quality of life questionnaire that has to be completed every 6 months
PROCEDURESatisfaction survey
Questionnaire regarding satisfaction of care that has to be completed on Day 1.
Sponsors
University Hospital, Antwerp
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
TREATMENT
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* NEN patient * 18 years or older * Patient should appear in Oncobase
Exclusion criteria
* Patients who do not have an email address
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Quality of life measurement with QLQ-C30 questionnaire | 5 years | Quality of life measurement with QLQ-C30 questionnaire |
| Quality of life measurement with QLQ-GI.NET21 questionnaire | 5 years | Quality of life measurement with QLQ-GI.NET21 questionnaire |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Quality of care measurement with satisfaction survey | 5 years | Quality of care measurement with satisfaction survey |
Countries
Belgium
Contacts
Primary ContactTimon U Vandamme
Backup ContactIsolde Van der Massen
Outcome results
None listed