Advance Care Planning, Ethnic Minorities, Family Caregivers
Conditions
Brief summary
In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.
Detailed description
Whether or not someone wants to engage in ACP, is often the result of a complex interplay of meanings, events, processes and assumptions constructed by the patient and is best approached by qualitative methods. Semi-structured interviews will be used in order to explore the respondents' knowledge about and experience with ACP, also their views concerning ACP for their relatives and how do they prefer to engage in the process of ACP for their relatives will be explored.
Interventions
OTHERone to one interviews
one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP)
Sponsors
Universitair Ziekenhuis Brussel
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER
Masking
NONE
Intervention model description
one to one interviews
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Family carers of older adults with a Turkish or a Moroccan origin who have participated in our previous studies with NCT03930823 and NCT04335214, as identified by the older adults as the most significant family carer. Older adults in our previous studies were men and women, all 65 years and older and living in Flanders and Brussels. * and who live in Belgium and are 18 years or older and fluent in French or Dutch language. * and who have also given informed consent to participate in this qualitative interview study
Exclusion criteria
* None
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Knowledge of family carers of older adults from Turkish and Moroccan origin about advance care planning | 12 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you ever heard of advance care planning? Does that term mean anything to you? What do you know about communicating wishes in advance to family members or doctor and notice this? |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Experiences of family carers of older adults from Turkish and Moroccan origin have with engaging in the process of ACP for their relatives | 12 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you personally already spoken with some of your relatives about their future wishes what matters to him/her regarding his/her healthcare? If No: why? If yes: how? |
Other
| Measure | Time frame | Description |
|---|---|---|
| Family carers from Turkish and Moroccan origin views regarding their relatives engaging in the process of ACP? | 12 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Do you think it would be important that your relative discusses his/her wishes with someone? Can you explain it more in detail? |
| How do family carers of older adults with Turkish and Moroccan origin prefer to engage in the process of ACP for their relatives? | 12 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about speaking openly with your relative about ACP? Who do you think should be involved? Which role do you want in this process? * What do you hope this conversation will bring about? What are your expectations? What would you like to discuss? - Would you need help to start this conversation? Or would you record this alone? |
Countries
Belgium
Outcome results
None listed