Development Delay, Family Relations, Growth Disorders, Preterm Birth, Sensory Disorder
Conditions
Keywords
Preterm infant, Digital follow up, Electronic health monitoring
Brief summary
The aim is to study how a digital follow up tool can identify the preterm born children and their families who need further support or clinical interventions
Detailed description
This study runs a digital follow up parallel to clinical follow up, up to 2 years of corrected age of the child. It evaluates the ability of the digital follow up tool to identify the problems in growth and health, eating and feeding, neurodevelopment and parental wellbeing which require further support or interventions. This study includes all infants born under 34 weeks of gestation in Turku University Hospital during years 2019-2022 and those preterm children born under 32 weeks of gestation who turn to 2 years during years 2019-2021. Parent satisfaction about the digital follow up tool is asked at each time point and anonymously once per year. The follow up age points are the expected day of birth, 1 month, 2 months, 4 months, 8 months, 12 months, 18 months and 24 months after the expected birth date.
Interventions
OTHERePIPARI digital follow up tool
A digital platform includes questions to parents about child wellbeing and development and parent wellbeing. A notification by email or app comes two weeks before the follow up time point. The parents respond via a link to a webpage or via an app.They also receive information (text and video) about age-appropriate child development. ePIPARI includes 8 assessment points from term age until 2 years of corrected age.
Sponsors
University of Turku
University of Helsinki
Turku University Hospital
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
1 Months to 28 Months
Healthy volunteers
No
Inclusion criteria
* Children born before 34 weeks fo gestation and their parents * Clinical follow up at Turku University Hospital
Exclusion criteria
* Parents do not speak Finnish, Swedish or English
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Ability to identify children and parents in need for further support/interventions questionnaire | 0-28 months | Digital follow up tool is compared to clinical follow up |
| Response rate | 0-28 months | How many families responded at each time point |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Parent satisfaction Questionnaire | 0-28 months | Questionnaire at each time point after the digital follow up and anonymous once yearly |
Countries
Finland
Contacts
Primary ContactLiisa Lehtonen, MD
Backup ContactMilla Ylijoki, MD
Outcome results
None listed