Cystic Fibrosis
Conditions
Brief summary
The purpose of this study; The COVID-19 pandemic is to investigate the effects of COVID-19 fear levels of patients with cystic fibrosis on the psychosocial and quality of life levels of individuals.
Detailed description
After individuals were informed about the study, it was administered to individuals who gave written informed consent.This study was carried out on individuals with cystic fibrosis and healthy individuals who meet the eligibility requirements, through online forms.
Interventions
BEHAVIORALSurvey Form, The Hospital Anxiety and Depression Scale, The Fear of COVID-19 Scale,World Health Organization Quality of Life Scale- Bref Form
Online questionnaires were administered to individuals.
Sponsors
Elif Kabasakal
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
16 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* be 16 years of age or older * Having been diagnosed with Cystic Fibrosis * Volunteering to participate in the research
Exclusion criteria
* Being mentally incapable of successfully applying the scales to be applied for evaluation purposes * Being treated with sedative and antiepileptic drugs * Pregnancy
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| fear of covid-19 | November- December/2021 | COVID-19 Fear Scale: This scale is a one-dimensional instrument consisting of seven items with robust psychometric properties that measure fear of COVID-19. It has a 5-point Likert-type rating system (1: Strongly disagree, 5: Strongly agree). It is reliable and valid in assessing fear of COVID-19 among the general population. Turkish validity and reliability of the scale were ensured. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| psychosocial factors | November-December/2021November-December/2021 | Hospital Anxiety and Depression Scale (HADS): The scale consists of 14 items. 7 of these items measure anxiety and 7 of them measure depression symptoms. The items in the scale are evaluated with a 4-point Likert scale and are based on a scoring system between 0-3. |
Other
| Measure | Time frame | Description |
|---|---|---|
| quality of life assessment | November-December/2021November-December/2021 | It is an internationally comparable assessment tool developed by the World Health Organization. The scale evaluates the level of quality of life. The scale consists of 26 items. The Turkish version of WHOQOL-Bref consists of 27 items. Question 27 has been added to the Turkish version of the scale as a national environmental field and is used only in national studies. The scale includes the areas of physical health, psychological health, social relations, environment and national environment. It has a 5-point likert-type rating system. The score of each area is important on its own. Higher scores in each area indicate better quality of life. The first two questions of the quality of life scale are not included in the scoring and are evaluated separately. The number of questions, which was 26 in the original of the scale, is used as 27 in the Turkish version. |
Countries
Turkey (Türkiye)
Outcome results
None listed