End Stage Liver DIsease
Conditions
Brief summary
Specialist palliative care has been shown to be beneficial for patients experiencing serious illness, but has not been studied for patients being evaluated for liver transplantation. The investigators hope in the future to design a multi-center trial of a specialist palliative care intervention to measure the effects of specialist palliative care for patients undergoing liver transplant evaluation. This project represents a pilot to gather needed information to design such a future study.
Interventions
BEHAVIORALPalliative Care Consultation
In person or telehealth clinic visit with palliative care physician or nurse practitioner
Sponsors
Vanderbilt University Medical Center
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* adult patients (age 18 years or greater) undergoing evaluation for liver transplantation at Vanderbilt University Medical Center
Exclusion criteria
1. Patient does not speak English fluently 2. Patient lacks a telephone 3. Patient is a prisoner 4. Patient is deaf 5. Patient currently receives specialist palliative care 6. Patient is not a resident of Tennessee
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Acceptability of Intervention | 2 months | Score on the Acceptability of Intervention Measure (AIM) which measures how acceptable participants find the intervention with 4 questions, each scored 1-5 with higher scores indicating greater acceptability. |
| Appropriateness of Intervention | 2 months | Score on the Intervention Appropriateness Measure (IAM), which measures how appropriate the palliative care intervention seems to the study participants with 4 questions, each scored 1-5 with higher scores indicating higher appropriateness. |
Countries
United States
Outcome results
None listed