Ehlers-Danlos Syndrome
Conditions
Brief summary
The aim of this study is to assess the joint involvement (shoulder - ankle - knee - elbow - wrist) in patients with Ehlers-Danlos Syndrome and treated by surgery.
Interventions
BEHAVIORALA joint functional score based on the affected joint
A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: Shoulder (SSV; QuickDash), Knee (Lysholm tenger), Ankle (EFAS), Elbow and wrist (QuickDash) )
Sponsors
GCS Ramsay Santé pour l'Enseignement et la Recherche
European Clinical Trial Experts Network
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Patient over 18 years-old suffering from Ehlers-Danlos Syndrome and belonging to the EDS cohort of Raymond Poincaré Hospital in Garches * Patient with joint involvement of the shoulder treated by surgery * Patient with ankle joint damage treated by surgery * Patient with joint damage to the knee treated by surgery * Patient with elbow joint damage treated by surgery * Patient with joint involvement of the wrist treated by surgery * Patient affiliated or beneficiary of a social security scheme * Patient who has been informed of the research and does not object to the use of his data.
Exclusion criteria
* Patient objecting to the use of their data
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Joint function score according to the affected joint | 1 day | A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: * Shoulder (SSV; QuickDash), |
Countries
France
Outcome results
None listed