Health Communication
Conditions
Brief summary
Due to Coronavirus-19, we are exploring the plausibility of delivering the Me & My Wishes intervention via telehealth.
Detailed description
Me & My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me & My Wishes via a telehealth platform.
Interventions
BEHAVIORALMe & My Wishes
Me & My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me & My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts.
Sponsors
Brown University
National Institute on Aging (NIA)
University of Utah
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
The investigators propose to examine the plausibility of delivering Me & My Wishes using a telehealth platform. A convenience sample of five residents, their family members and long term care staff will be enrolled.
Eligibility
Sex/Gender
ALL
Age
65 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Resident Inclusion Criteria: * Identified as having Alzheimer's or related dementia * Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only) * Makes Self Understood = \<1 (MDS B0700)/present in medical record * Understood By Others = \<1 (MDS B0800)/present in medical record * Reside at the facility at least 2 weeks identified as a long-term resident * Age \>65 years * Speaks English Family Inclusion Criteria: * Speaks English * Willing and able to watch the videos * Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating. Staff Inclusion Criteria: * Speaks English * Willing to watch the videos * Willing to complete short surveys Resident
Exclusion criteria
* Limited communication capacity (e.g. aphasia) * Comatose * Cognitively intact * Severe cognitive impairment
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Feasibility of telehealth-delivered Me & My Wishes | baseline | ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better |
Countries
United States
Outcome results
None listed