Disabilities Mental, Disabilities Physical
Conditions
Brief summary
France currently has more than 10 million disabled people, including 3 millions who could be better treated. In fact, people with disabilities face many obstacles in accessing care and receiving appropriate support (physical access to certain locations, communication...). Difficulties are also encountered by the healthcare staff, leading to often heterogeneous practices in health establishments. The INFRA health circuit has been set up at the Groupe Hospitalier Mutualiste de Grenoble since June 2018 according to the guidelines published by the French High Authority for Health (HAS) on improving professional practices Reception, support and organization of care in health establishments for people in situation of handicap of July 2017. The INFRA nurse collects and anticipates the necessary adaptations for the patient's stay, in conjunction with their caregivers (whether family or institutional). They are an interface with other healthcare professionals to adapt care procedures and protocols (body care, feeding methods, pain management, drug management) to the patient's disability. Before hospitalization and until the patient is discharged, the INFRA nurse transmits to the personnel involved all the information necessary for the proper continuation of care. In addition to legal and regulatory obligations, the INFRA nurse ensures the effective accessibility of the establishment's facilities and premises, and helps maintaining patient autonomy. The INFRA study is an observational study aimed at assessing the feasibility of the INFRA health circuit and evaluating the benefit for the patients and the healthcare staff.
Interventions
None listed
Sponsors
Groupe Hospitalier Mutualiste de Grenoble
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
13 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* 13 years old or more * Physical or mental disability, according to french law n°2005-102 of February 11th, 2005 * Requiring an adaptation of the healthcare circuit * Indication of a planned surgical procedure
Exclusion criteria
* Outpatient * Emergency surgery
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Number of patients who followed the entirety of INFRA circuit | At discharge, assessed up to 4 weeks |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Type of pain evaluation scale selected by the INFRA nurse | enrollment | — |
| Number of healthcare adaptations implemented during hospitalization | At discharge, assessed up to 4 weeks | — |
| Satisfaction of patients and caregivers | At discharge, assessed up to 4 weeks | Satisfaction survey answered by patients and caregivers |
| Satisfaction of healthcare staff | At discharge, assessed up to 4 weeks | Satisfaction survey answered by healthcare staff |
Countries
France
Outcome results
None listed