Dysphagia
Conditions
Brief summary
When reviewing the literature, the need to investigate the health education of patients with dysphagia and their family members / caregivers has been detected. Numerous articles mention or it can be inferred from them that an education or training has been carried out for the patient and caregivers, but the investigators have not found any that specifically focuses on this aspect of the intervention. Only in some Clinical Practice Guidelines is the need for health education included
Interventions
BEHAVIORALhealth education
data collect / Telemedicine
Sponsors
Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 99 Years
Healthy volunteers
No
Inclusion criteria
* People between 18 and 99 years old diagnosed by videofluoroscopy of oropharyngeal dysphagia and who are candidates for speech therapy treatment for this reason. * Knowledge of the language sufficient to understand the audiovisual material on health education available at: logopediasantpau.wordpress.com * Have the necessary technological tools to carry out the telematic processing (electronic device with Internet access and WhatsApp) and know how to use them or have a family member / direct caregiver with basic technological skills. * Signature of the informed consent
Exclusion criteria
* Moderate or severe cognitive impairment already known from the medical history or evaluated with the MoCA test in the absence of a family member or caregiver. * Having undergone speech therapy treatment for oropharyngeal dysphagia in the last year. * Not signing the informed consent.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Dysphagia Severity Rating Scale | up to 1 year | Scale assessment by MBS ( 1 Non Oral - 7 Full oral intake) |
| Functional oral intake scale | up to 1 year | Scale assessment (1nothing by mouth - 7 full oral intake) |
| Penetration Aspiration Scale | up to 1 year | Scale Assessment by MBS (1 No airway penetration - 8 Airway aspiration, no cough) |
| Bolus Residual Scale | up to 1 year | Scale Assessment by MBS (1 No residues - 6 Residue in Valleculae and posterior Pharyngeal wall and piriform sinus) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| SwalQOL | Up to 1 year | Quality of life related to oropharyngeal dysphagia (11 Domains) |
Countries
Spain
Contacts
Primary ContactHelena Bascuñana Ambros, MD, PhD
Outcome results
None listed