Neurodevelopmental Disorders
Conditions
Keywords
pediatric rehabilitation, intensive therapy
Brief summary
The purpose of this study is to explore the lived experiences of children with neurodevelopmental diagnoses and their caregivers with an intensive model of therapy. Children will receive usual care during the summer intensive program and the investigators will access medical records to assess effectiveness. Children and caregivers will also be asked to participate in semi-structured interviews upon the completion of the episode of care.
Detailed description
The purpose of this study is to explore the lived experiences of children with neurodevelopmental diagnoses and their caregivers with an intensive model of therapy. Research questions include: 1.) What are the perceptions of children and caregivers about intensive therapy after participating in multiple intensive therapy episodes over time? 2.) Why do caregivers choose to continue with an intensive model of therapy periodically for their child with neurodevelopmental diagnoses? 3.) What were the outcomes for children with neurodevelopmental disabilities participating in an episode of intensive therapy? Children will receive usual care during the summer intensive program and the investigators will access medical records to assess effectiveness. Children and caregivers will also be asked to participate in semi-structured interviews upon the completion of the episode of care.
Interventions
OTHERIntensive therapy program
The intensive therapy program consists of physical therapy, occupational therapy, and speech therapy 3-6 hours x 4-5 days/week for 4 weeks. The individual therapies received will vary with the child/caregiver goals and be based on neuroplasticity and motor learning principles.
Sponsors
University of Missouri-Columbia
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
4 Years to 15 Years
Healthy volunteers
No
Inclusion criteria
* Children receiving therapy through the Children's Therapy Center's Tiger Intensive Program and their caregivers from May 24 to August 13 2021.
Exclusion criteria
* n/a
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Semi-structured interviews | at discharge assessed up to 10 days | Upon completion of the program, children and caregivers will participate in an interview about their experience |
| Canadian Occupational Performance Measure | measured at discharge 4 weeks after enrollment | Individualized client-centered performance measure |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Change in GOAL | Measured at day 1 and discharge 4 weeks later | patient reported measure of function mobility |
| Change in Pediatric Evaluation of Disability Inventory | Measured at day 1 and discharge 4 weeks later | Measure of amount of disability |
| Pediatric Balance Scale | Measured at day 1 and discharge 4 weeks later | Measure of balance |
| Change in Timed Up and Down Stairs | Measured at day 1 and discharge 4 weeks later | Measure of stair performance |
| Change in Timed on and off the floor | Measured at day 1 and discharge 4 weeks later | Measure of transition from floor to standing |
| Change in Lower extremity passive range of motion | Measured at day 1 and discharge 4 weeks later | Measured at ankle, knee, and hip with goniometer |
| Change in Thomas Test | Measured at day 1 and discharge 4 weeks later | Hip flexor length test |
| Change in 6 minute walk test | Measured at day 1 and discharge 4 weeks later | Measure of walking performance |
| Change in Gastrocnemius muscle length | Measured at day 1 and discharge 4 weeks later | Measured with goniometer |
| Change in Kids Bestest | Measured at day 1 and discharge 4 weeks later | Balance measure for pediatric patients |
| Change in m-CTSIB | Measured at day 1 and discharge 4 weeks later | Balance measure |
| Change in Early Clinical Assessment of Balance | Measured at day 1 and discharge 4 weeks later | Balance measure |
| Change in Segmental Assessment of Trunk Control (SATCO) | Measured at day 1 and discharge 4 weeks later | Measurement of trunk control |
| Change in Edinburgh Visual Gait Scale | Measured at day 1 and discharge 4 weeks later | Observational Gait measure |
| Change in popliteal angle | Measured at day 1 and discharge 4 weeks later | Hamstring length test |
| Change in Peds QL | Measured at day 1 and discharge 4 weeks later | Pediatric quality of life measure |
Countries
United States
Outcome results
None listed