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Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care: Qualitative Study - Monocentric Study

Status
Completed
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT04820998
Acronym
HaSPrEA
Enrollment
45
Registered
2021-03-29
Start date
2021-09-01
Completion date
2023-01-01
Last updated
2023-07-10

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autistic Disorder

Keywords

precarious, support, care, professional interview, family interview

Brief summary

Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

Detailed description

Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account. A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat. The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

Interventions

OTHERFamilies

Families's interviews about their precarious situation of living and the consequences on their autistic child care

OTHERprofessionals

Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Sponsors

Centre Hospitalier Universitaire de Saint Etienne
Lead SponsorOTHER

Study design

Observational model
CASE_ONLY
Time perspective
PROSPECTIVE

Eligibility

Sex/Gender
ALL
Age
No minimum to 18 Years
Healthy volunteers
No

Inclusion criteria

* Families having their child followed in the child psychiatry service of the Léo Kanner Center (CLK), * Children followed for Autism Spectrum Disorders (ASD), * Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.

Exclusion criteria

* Opinion of the child's referring physician contraindicating inclusion * Refusal of one of the legal guardians to participate in the study

Design outcomes

Primary

MeasureTime frameDescription
living conditions of children with Autism Spectrum Disorders (ASD)hours 2To identify the living conditions related to the housing of children with Autism Spectrum Disorders (ASD) who are cared for at the Léo Kanner Center (CLK), psychopathology department of the University Hospital of Saint-Etienne.

Secondary

MeasureTime frameDescription
Precarityhours 2Families's interviews about their precarious situation of living and the consequences on their autistic child care

Other

MeasureTime frameDescription
Professionalshours 2Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Countries

France

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026