Living Kidney Donation
Conditions
Keywords
eHealth, value-based healthcare
Brief summary
Several web portals for patients are available, but an assessment of their performance is scarce. This is of particular interest among candidates for kidney living donation. A crucial aspect of living donation is to provide standardized information about the risks of the procedure. In 2019 it was launched a personalized digital care path for kidney living candidates, which contains information about the donation process and facilitates the communication between clinicians, transplant coordinators, and patients, enabling telemedicine. We aim to investigate living donor candidates' experience with the Health Village web portal and the digital care path for living donor candidates. The secondary aim is to investigate their attitude of living donor candidates to eHealth services.
Detailed description
Background. Several web portals for kidney patients are available, but an assessment of their performance is scarce. This is of particular interest among candidates for kidney living donation. A crucial aspect of living donation is to provide standardized information about the risks of the procedure. In Finland, the web portal Health Village contains general information about kidney diseases. In 2019 it was launched a personalized digital care path for kidney living candidates, which contains information about the donation process and facilitates the communication between clinicians, transplant coordinators, and patients, enabling telemedicine. The performance of this eHealth service has not yet been studied. Objectives. to investigate living donor candidates' experience with the web portal Health Village and the digital care path for living donor candidates. The secondary aim is to investigate their attitude of living donor candidates to eHealth services. Methods. A prospective cross sectional survey study. Participants will be all kidney donor candidates who have used the digital care path since its implementation in January 2019 up to 1.3.2021 (N=122). The surveys will include general data, the type of electronic devices in possession and the purpose of use. eHealth literacy will be assessed with the eHeals questionnaire. Platform's ease of use will be assessed with the System Usability Scale, and participants´ opinion about the digital path utility with six questions. These items will be answered with a Likert-scale. Finally, we added an open question for qualitative analysis.
Interventions
OTHERsurvey study
The surveys will include general data, the type of electronic devices in possession and the purpose of use. eHealth literacy will be assessed with the eHeals questionnaire. Platform's ease of use will be assessed with the System Usability Scale, and participants´ opinion about the digital path utility with six questions. These items will be answered with a Likert-scale. Finally, we added an open question for qualitative analysis.
Sponsors
University of Oulu
Helsinki University Central Hospital
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Living donor candidates from Helsinki area, from 2019 onwards
Exclusion criteria
* Living donor candidates from other areas of the country * non-Finnish speakers
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Patient´s experience | 4 months | Measured with Likert scale |
| Patient´s e-Health literature | 4 months | Measured with Likert scale |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Gender differences | 4 months | to assess gender differences in the use of eHealth |
Contacts
Primary ContactFernanda Ortiz, PhD, MD
Backup ContactGuido Giunti, PhD, MD
Outcome results
None listed