Posttraumatic Stress Disorder, Psychosocial Impairment, Single-ventricle
Conditions
Keywords
remote monitoring, nursing, parents, transition
Brief summary
The primary objective of this study is to measure parent's post-traumatic stress before and after their infant's second palliative heart surgery for single ventricle congenital heart disease. The investigators will use the posttraumatic stress disorder checklist for the DSM-V (PCL-5) to measure levels 2-4 weeks before and after the infant's second heart surgery. The investigators aim to describe the levels at the two-time points, compare the scores, and identify demographic information that correlates with the scores.
Interventions
None listed
Sponsors
University of Missouri, Kansas City
Children's Mercy Hospital Kansas City
Study design
Observational model
COHORT
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* Parent who is 18 years or older of an infant with SVCHD * Following with CHAMP through Children's Mercy Hospital. Any person personally identifying as a parent of the child, who lives in the same household as the infant, and who will provide primary care after discharge from the hospital is eligible to participate.
Exclusion criteria
* Parents of an SVCHD infant who is undergoing end-of-life care, determined by the primary care team.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Measure the level of parental post-traumatic stress two to four weeks before their infant's second palliative heart surgery | on average at 4-6 months of age | Measure level using the posttraumatic stress disorder checklist for the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. The scores range 0-80 with scores greater than or equal to 31 suggest provisional Posttraumatic stress disorder diagnosis. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Measure the level of parental post-traumatic stress two to four weeks after discharge following their infant's second palliative heart surgery. | On average 5-6 months of age | Measure level using the posttraumatic stress disorder checklist for the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. The scores range 0-80 with scores greater than or equal to 31 suggest provisional Posttraumatic stress disorder diagnosis. |
Other
| Measure | Time frame | Description |
|---|---|---|
| Examine the relationship of parental post-traumatic stress level before and after their infant's second palliative heart surgery. | through study completion, an average of 1 year | Compare the two PCL-5 scores. |
| Examine what demographic variables are the mediators and moderators of the correlations. | through study completion, an average of 1 year | Examine any correlation between selected demographics and PCL-5 scores. |
Countries
United States
Outcome results
None listed