Disability Physical, Intellectual Disability
Conditions
Brief summary
Evaluation of patient characteristics, involved physicians and therapists as well as therapies in a German University Center for the Treatment of patients with intellectual disabilities and severe multiple disability (MZEB Aachen)
Detailed description
In the MZEB Aachen, since 11/2018 patients with intellectual disabilities and/or severe multiple disabilities are diagnosed, treated and accompanied for many years in a multidisciplinary setting with physicians, nurses, physiotherapists, ergo therapists, speech therapists and Support by social workers. MZEBs are considered to have a pilot function in the health care system, cooperating with therapists and physicians in the surroundings. This concept is established as a new concept in Germany in order to optimise health care for patients with disabilities. Thus we want to investigate patient characteristics, diagnoses, involved physicians and therapists as well as proposed therapies and disease progress in this center.
Interventions
OTHERstandard treatment
there ist no Intervention but our standart Treatment in the center
Sponsors
RWTH Aachen University
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 80 Years
Healthy volunteers
No
Inclusion criteria
* intellectual disability and/or severe multiple disability (disability degree GdB at least 70 and at least one noticeable sign * willing to participate
Exclusion criteria
* housed in an Institution and/or prison
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| change in number of therapy sessions | baseline and after one year treatment | change in the number of therapy sessions per month |
| Change in diagnoses | baseline and after one year treatment | Change in percentage of definite diagnoses |
Countries
Germany
Contacts
Primary ContactAndrea Maier, MD
Backup ContactRobin Steiner
Outcome results
None listed