Neuromuscular Diseases
Conditions
Keywords
Mechanical insufflation-exsufflation, Cough assistance
Brief summary
With this cross-sectional study of adult subjects with neuromuscular disease in the French-speaking part of Switzerland, we aim to explore MI-E adherence using self-report questionnaires and device data in order to identify the factors that influence the pattern of MI-E use and satisfaction with the treatment. Determining potential barriers to regular long-term home use of MI-E could help in identifying the patients who would benefit most from this therapy.
Interventions
DEVICEMechanical insufflation/exsufflation device (MI-E)
download of device (MI-E) data and self-reported satisfaction with the device
Sponsors
Ligue Pulmonaire Vaudoise
University Hospital, Geneva
Centre Hospitalier Universitaire Vaudois
Study design
Observational model
CASE_ONLY
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Age over 18 years * Diagnosis of neuromuscular disease * Active prescription of MI-E for more than 3 months
Exclusion criteria
-Invasive airway
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Adherence to MI-E (reported) | 12 months, or since treatment initiation (> 3 months) | based on self-reported use |
| Adherence to MI-E (objective) | 12 months, or since treatment initiation (> 3 months) | based on data downloads |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Satisfaction with the device | 12 months, or since treatment initiation (> 3 months) | Self-report questionnaire |
Countries
Switzerland
Outcome results
None listed