Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Registry for Patients With Desmoplastic Small Round Cell Tumor

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT04690374

Enrollment

250

Registered

2020-12-30

Start date

2020-12-22

Completion date

2027-12-31

Last updated

2026-01-12

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Desmoplastic Small Round Cell Tumor

Keywords

Patient registry, 20-551

Brief summary

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

OTHER

Eligibility

Sex/Gender

ALL

Healthy volunteers

Inclusion criteria

* Participants must have a diagnosis of desmoplastic small round cell tumor * Participants may be of any age as long as the appropriate consent and assent may be obtained * Willing to provide historical and longitudinal clinical data

Exclusion criteria

* Participant unwilling to provide consent or share historical and longitudinal clinical data

Design outcomes

Primary

Measure	Time frame	Description
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor	7 years	The aim of this study is the collection of data.

Countries

United States

Contacts

Primary ContactEmily Slotkin, MD

slotkine@mskcc.org1-833-675-5437

Backup ContactShakeel Modak, MD

1-833-675-5437

Outcome results