Breast Cancer, Cancer, Caregiver Burnout, Colon Cancer, Lung Cancer
Conditions
Brief summary
This proposed intervention centers on improving survivorship outcomes among African American and Latinx cancer survivor and caregiver dyads. As a result, there will be four major outcomes. First, as a result of partnership with minority social institutions (e.g. faith leaders), we will develop an in-depth culturally sensitive curriculum and survivorship care plan for Cancer Survivorship and Caregiver Leaders Aimed for Minority Populations (CSC LAMPs). Second, we will increase knowledge and skills by evaluating a comprehensive cancer survivorship training program designed for underserved health professional students. Third, the implementation of this program will improve survivorship outcomes among African American and Latinx cancer survivors with advanced stage cancer and their caregivers. Lastly, this study will build sustainability for underserved minorities with the training of 30 future healthcare providers as a valuable community resource for improving cancer survivorship outcomes. The long-term outcomes of the CSC LAMPs program will generate workforce capacity and diversity in cancer-based clinical practice, research, and community advocacy for underserved minority cancer survivors and caregivers.
Interventions
BEHAVIORALChange in knowledge, motivation, skills, and resources
Provide/enhance knowledge, modify attitudes, motivate and provide skills and resources to improve survivorship outcomes.
Sponsors
Charles Drew University of Medicine and Science
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Aim 1 Focus Group for Cancer Survivors and Caregivers: Inclusion Criteria * Individuals ages 18 and older * identify as African American or Latinx * identify as a cancer survivor and/or caregiver * speak and/or understand English
Exclusion criteria
* individuals ages 17 years or younger * does not identify as African American or Latinx * unable to speak or understand English * does not identify as a cancer survivor or caregiver Aim 1 Focus Group for Oncology Healthcare Providers: Inclusion Criteria * Individuals ages 18 and older * identify as a healthcare provider * provide care to cancer patients in current provider role * speak and/or understand English
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Increase in psychosocial well-being using the Quality of Life: Short Form Health Survey and the Center for Epidemiologic Studies Depression Scale | 3 months | By comparison from baseline to post-intervention, there will be a 25% increase in the psychosocial well-being among study participants. |
| Reduction of barriers to symptom management Using the Symptom Distress Scale survey | 3 months | By comparison from baseline to post-intervention, there will be a 25% decrease in the barriers to symptom management among study participants. |
| 3. Decrease in unmet needs Using the Barriers to Follow-Up Care Survey and Cancer Survivors Unmet Needs instrument | 3 months | By comparison from baseline to post-intervention, there will be a 25% decrease in the unmet needs among study participants. |
| Reduction in caregiver burden using the Caregiver reaction assessment (CRA) survey | 3 months | By comparison from baseline to post-intervention, there will be a 25% decrease in the caregiver burden among study participants. |
| 5. Increase knowledge and utilization of supportive services using the Medical Outcomes Study Social Support Survey | 3 months | By comparison from baseline to post-intervention, there will be a 25% increase in the knowledge and utilization of supportive services among study participants. |
Countries
United States
Outcome results
None listed