Health, Subjective, Spinal Cord Injuries
Conditions
Keywords
patient reported outcomes, ICF, Survey, Interview
Brief summary
The purpose of the Finnish Spinal Cord Injury Study (FinSCI) is to identify factors related to the health and functioning of people with spinal cord injury (SCI), their challenges with accessibility and how such factors are interconnected. The International Classification of Functioning, Disability and Health (ICF) is used in the study as a structured framework. The study participants will be recruited from three SCI outpatient clinics, which together are responsible for the life-time care of the SCI population in Finland. Mixed methods are used including a questionnaire and interviews. The survey will be formed from patient-reported instruments; SCI-specified Spinal Cord Injury Secondary Condition Scale, Spinal Cord Independence Measure, Nottwil Environmental Factors Inventory Short Form and selected items of the generic instruments of Patient-Reported Outcomes Measurement Information System and National study of health, well-being and service. The survey covers 51 ICF categories. The study results can help develop care and rehabilitation policies with SCI, the planning of training models and information provided to various parties involved.
Detailed description
The detailed description of the protocol has been published. Please, see the reference Tallqvist et al.
Interventions
OTHERQuestionnaire
Questionnaire for all, interview for part of the respondents.
Sponsors
Helsinki University Central Hospital
Tampere University Hospital
Oulu University Hospital
The Finnish Association of Spinal Cord Injured Akson
Finnish Institute for Health and Welfare
The Finnish Association of People with Physical Disabilities
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
16 Years to No maximum
Inclusion criteria
* 16 years or over * Traumatic or non-traumatic SCI * ASIA-classification A,B,C tai D * Time since onset of SCI over 6 months * Client of HUS, Tays or Oys SCI outpatient clinic
Exclusion criteria
* Innate SCI * Progressive new non-traumatic SCI * Neurodegenerative disease * Multiple sclerosis amyotrophic lateral sclerosisGuillain-Barre syndrome Institutional care
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Cohort Survey of Health, Functioning, and accessibility of spinal cord injury population in Finland | 1.2.-31.7.2019 | Survey includes parameters of secondary conditions of spinal cord injury, independency, environmental factors, health, well-being and services |
Countries
Finland
Outcome results
None listed