Diabetes, Diabetes Mellitus, Diabetes Mellitus, Type 1, Type 1 Diabetes
Conditions
Keywords
insulin, t1d, dm, diabetes, type 1, glucagon
Brief summary
The T1D Exchange Registry is a research study, conducted over time, for individuals with type 1 diabetes and their supporters. Participants volunteer to provide their data for research (for example, by answering questions in annual surveys). Once enrolled, Registry participants have the opportunity to sign up for other studies on various topics related to type 1 diabetes. To participate, you will be asked to: * Read and sign an online informed consent form * Take a survey describing specific demographic and type 1 diabetes management information * Update your information annually * Periodically opt in for additional research opportunities (if you choose), i.e. taking new surveys or uploading health device data
Interventions
OTHERNo intervention
Observational research study
Sponsors
T1D Exchange, United States
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* Clinical diagnosis of type 1 diabetes. * Individuals younger than 18 years of age must have parent/guardian consent. * Must be able to read and understand English. * Currently living in the United States
Exclusion criteria
* Does not use insulin and has not had a pancreatic or islet cell transplant. * Cannot fully read and understand English. * Does not currently live in the United States.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Gather longitudinal data from individuals living with type 1 diabetes. | 10 years | Gather longitudinal data on disease, health status, and patient-reported outcomes of individuals living with type 1 diabetes. This will be achieved by presenting participants with annual questionnaires, tracking any changes in their responses over time. |
Countries
United States
Contacts
Primary ContactKelsie LaFerrier
Backup ContactJulia Ravelson
Outcome results
None listed