Neurodevelopmental Disorders
Conditions
Brief summary
This study is a retrospective cohort study. The PICU children will include all surviving children who were admitted to the PICU of Copenhagen University Hospital between 1st of January 2002 and 31st of December 2016. A link to a questionnaire including the Strengths-and-Difficulties parental questionnaire evaluating neurodevelopmental- and behavioral impartment as well as question on current impairments and health, will be sent to parents. For the children aged between 11 and 17 years an additional self-rated questionnaire will be provided.
Detailed description
This study is a retrospective cohort study. The PICU children will include all surviving children who were admitted to the pediatric intensive care section of the Department of Neonatology of Copenhagen University Hospital between 1st of January 2002 and 31st of December 2016. The Strengths-and-Difficulties parental questionnaire evaluating neurodevelopmental- and behavioral impartment is web-based an hosted on a safe hospital server. The link will be sent to the universat digital post-box that all Danish citizens use for contact to the public authorities. For the children aged between 11 and 17 years an additional self-rated questionnaire will be provided. Furthermore, parents will answer questions on chronic illness, motor and sensory handicap, and special pedagogical support in day care institutions and school.
Interventions
OTHERadmission to pediatric intensive care with mechanical ventilation
admission to pediatric intensive care with mechanical ventilation
Sponsors
Rigshospitalet, Denmark
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
2 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Admitted to the PICU of Copenhagen University Hospital between 1st January 2002 to 31st of December 2016 * Age of admission \> 28 days, if born \> 37 + 0 or have reached the gestational age of \> 40 weeks if the child is premature. * Needing ≥ 2 days ventilator support during the PICU stay * Valid civil registration number Exlusion criteria: \- Death before follow-up
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Total difficulty score of the SDQ questionnaire | 2 to 18 years of age | Total difficulty score of the Strengths and Difficulties Questionnaire |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Rate of cerebral palsy | 2 to 18 years of age | cerebral palsy defined as 2 or higher on the GMFCS-scale |
Other
| Measure | Time frame | Description |
|---|---|---|
| Rate of learning disability | 2 to 18 years of age | any educational or pedagogical support as reported by parents, more than 9 hours per week |
| Rate of chronic disease | 2-18 years | any disease requiring continued medication and/or medical check-ups |
| Rate of visual impairment | 2-18 years | that cannot be corrected by glasses or blind |
| Rate of hearing impairment | 2-18 years | requiring amplification by hearing aid or deaf |
Countries
Denmark
Outcome results
None listed